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Cold feet due to neuropathy - need help

Posted by napa @napa, Feb 9, 2020

Hello, I have extremely cold feet due to my neuropathy. The doctors cannot help. Any suggestions or help? Thank you!

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 17, 2024
In reply to @busylady "I use “toe warmers” similar to hand warmers. You can purchase them in Walmart or online...." + (show)
@busylady

I use “toe warmers” similar to hand warmers. You can purchase them in Walmart or online. I tuck them into my shoes and my toes are warm all day. It’s says on the package that they last 8 hours, but I find they last much longer than that.

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I use the toe warmers also but have found another type that is reusable and can be washed called Hot Sockee. It's a neoprene sleeve that covers the toes and slides over your socks - https://www.amazon.com/Hot-Sockee-Neoprene-Warmers-Construction/dp/B076B3VTRM.

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1 reply
artemis1886 | @artemis1886 | Feb 17, 2024

I read on here sometime wearing socks to bed. I bought some really soft big socks and sleep in them. It helps keep my feet warm. I have problems with cold feet and cold hands. One thing I do because I stay cold when the temperature is 105 in Texas is I keep a cardigan sweater in my car along with a blacker to cover my legs when they get cold. I am constantly in long sleeves. My temperature regulator is broken because of the neuropathy.

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1 reply
terriann | @twinkie23 | Feb 17, 2024
In reply to @slkanowitz "Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also..." + (show)
@slkanowitz

Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also causes Raynauds like Chris described (purple toes). I take a medication for Raynauds and high blood pressure (amlodipine) that helps both and I know it helps the cold feet. You both might ask your Drs about a low dose of it to help the circulation in your feet. It relaxes arteries and improves blood flow to the feet. As long as your BP isn’t low, it should be fine to try.
I’m going to try your ideas for warming my feet!

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I have just read the results of my recent nerve conduction test suggesting that I have Pure Sensory Polyneuropathy. I also have lupus. My left foot is ice cold! I wear wool socks and trail running shoes most of the time but can’t get my foot to warm up unless I put it on a heating pad. Think I’ll try the toe warmers. Anyway, we have a lot in common and I have a lot to learn so hope to hear from you again. Blessings to you!

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ebero | @ebero | Feb 17, 2024

On cold nights with the cold feet, I've tried putting a 'hot hands' (those chemical heat bags meant for hands in cold weather) down near my feet. I don't put it in contact with the feet, but it warms the area up and feels good.

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busylady | @busylady | Feb 18, 2024
In reply to @johnbishop "I use the toe warmers also but have found another type that is reusable and can..." + (show)
@johnbishop

I use the toe warmers also but have found another type that is reusable and can be washed called Hot Sockee. It's a neoprene sleeve that covers the toes and slides over your socks - https://www.amazon.com/Hot-Sockee-Neoprene-Warmers-Construction/dp/B076B3VTRM.

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Thanks you.

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1 reply
bcool123 | @bcool123 | Feb 18, 2024
In reply to @ebero "Twins! My feet are cold almost all the time.....except for when they are burning, which is..." + (show)
@ebero

Twins! My feet are cold almost all the time.....except for when they are burning, which is weird when I put them in cold water and they still just burn away there. I just did all the same tests you have coming up (Brain MRI, nerve conduction, punch biopsy) and have the SFN diagnosis with possible Sjogrens. I see that I am falling behind you in fun activities, though. I need to learn table tennis and bridge! 😀
Hang in there. And, don't do what I did--have ALL those tests, one after the other, in the same week. I freaked, my insurance freaked, it wasn't a wise choice. :0

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Ebero, I’ve found that drinking HOT water, at least 8oz helps. So easy and inexpensive!! Might help…, Bcool123

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minfromtexas | @minfromtexas | Feb 19, 2024
In reply to @busylady "Thanks you." + (show)
@busylady

Thanks you.

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I used to use these for winter cycling. The problem is that they are pretty thick and probably would not fit into standard shoes. I found that they were great for keeping the wind at bay, but not for keeping my feet warm.

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inminn | @inminn | Feb 19, 2024
In reply to @artemis1886 "I read on here sometime wearing socks to bed. I bought some really soft big socks..." + (show)
@artemis1886

I read on here sometime wearing socks to bed. I bought some really soft big socks and sleep in them. It helps keep my feet warm. I have problems with cold feet and cold hands. One thing I do because I stay cold when the temperature is 105 in Texas is I keep a cardigan sweater in my car along with a blacker to cover my legs when they get cold. I am constantly in long sleeves. My temperature regulator is broken because of the neuropathy.

Jump to this post

Yes, good suggestion! The best I’ve found are cashmere “bed socks”, so called because they lack elastic and are less likely to cause edema/impressions overnight. However, some soft, inexpensive socks (diabetic socks) may be purchased at Walgreen’s or online through Amazon or individual stores which also have non-restrictive cuffs. The bonus is that one can put on foot moisturizing or pain creams beforehand.

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marquis113 | @marquis113 | Feb 19, 2024
In reply to @busylady "I use “toe warmers” similar to hand warmers. You can purchase them in Walmart or online...." + (show)
@busylady

I use “toe warmers” similar to hand warmers. You can purchase them in Walmart or online. I tuck them into my shoes and my toes are warm all day. It’s says on the package that they last 8 hours, but I find they last much longer than that.

Jump to this post

Have you had your thyroid checked and also B vitamins?

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