I have Sjogrens and dryness is progressively getting worse.

I take it but it does nothing for me.

And rubbing coconut oil over my dry legs after a shower keeps them a lot softer with no dry skin there at least. The rest of my skin reacts well to coconut oil internally also.

My sister has had this twice and it's a symptom of an auto-immune disorder of: "Red ears are also often a classic symptom of relapsing polychondritis (RP), a rare autoimmune disease that attacks various cartilage areas (and sometimes other connective tissue areas) in the body;" My sister has found that a small amount of prednisone keeps this at bay. It's serious because your throat can swell up & cause breathing problems.

Thank you for the response this gives me something new to discuss with my doctor. The ears seem to be turning red more often in the last 4-5 months and the stinging lips last 3 months

HELLO sbtheplumer,
I take Pilocarpine it's fair. But if you can't find anything else that helps it's worth taking it.

Hi,
I don’t really know if it helps anymore, I have been using it for years and would be scared to stop.
I also take Plaquenil, that helps the arthritis pain in my hands but not the Sjogrens.
I have very dry and itchy skin which I always put down to the Sjogrens, but now I have been diagnosed with EPI, so it could be that too.
Good luck to you

hi again!
I have Sojgrens also. I can't find anything for dry eyes. Using Blink not too bad but waking in the morning everything is blurry and dry.
Can Sojgren's effect fingers? S.F.N. is effecting my hands and fingers sometimes shake, when doing dishes untensils fall out of my hands, computer keys ETC ETC! do others have the same?Hip surgery destroyed my nerves like a domino effect! Surgeon I had SMN!!!!!!!!!!!!!! What didn't he bring it up!!!!!!!!!!!!!! I never thought of it! Neurosurgeon sent me to him! He also should have let me know! My only social life is doctors.

I got a second opinion on treatment for Antisynthetase Syndrome. The MD recommended Imuran and low and behold my Opthamologist says my dry eyes are healing. I rarely use eye drops now and my dry mouth is improving!

I use Refresh Plus and sometimes Refresh Celluvisc ( but only before bed because it leaves your lashes crusty) I was also recommended EvoTears Omega, just got approved by the FDA, but it’s expensive.
I had a test that showed my eyes aren’t so dry, but they still feel dry!
It‘s not Sjogrens that‘s effecting my fingers, I have arthritis which is a separate issue, somehow the Plaqenil helps with the pain, a great side effect.
I feel for you 🙁

My ophthalmologist put plugs in my eyes and they have really helped. Have your hands been checked for carpal ? I was dropping everything and my fingers were tingling. It was a simple operation and the recuperation was only a few weeks.
good luck.