Mass on lung and lymph nodes
I had a routine Cat Scan about a month ago and found large mass in lung and probability of surrounding lymph nodes. I have consultation this week to discuss best approach to biopsy and also setting up Pet scan. I’m beyond devastated and scared. I heard the needle biopsy is miserable. I feel certain I’m facing death and perhaps worse thing is telling my two adult daughters who already lost their dad when they were kids.
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Where is yours located that makes it not operable?
May I ask the process you did to be a patient of Mayo?
May I ask about your diagnosis? Specifically how were your lymph nodes characterized? Swollen? Size?
Your words about your life are very helpful for me, thank you.
Would you be comfortable telling me what they said about your lymph nodes on the CT report or any report? How were they characterized?
My husband emailed initially and was advised to send my records . So he did and the clinic took me on. I had to undergo lots of tests, the same as with my first cancer clinic. It was a frightening time. I’ve been in one clinical trial that showed no progress, two standard treatments, one immunotherapy and now in a second clinical trial that seems to be working. I wish you good health.
Thank you, you as well.
@skm101, welcome to Mayo Connect. I'm sorry that you are having to go through this, but I'm glad that you found us. Feeling scared of the unknown is expected. Having more information from the results of the scans and tests will only fill in the gaps and help you to know what to expect.
My cancer was identified at a late stage, with spread to the liver and lymph nodes. The lymph nodes in the center of my chest were enlarged and were placing pressure on my windpipe and esophagus. The largest lymph node at the time of diagnosis was 1.2 cm. Different radiologists will describe enlarged lymph nodes differently, but they usually include an approximate measurement. I had a recent scan that showed lymph node at 2.5cm, but it was confirmed to be fungal, not cancer! Enlarged lymph nodes can mean your body is fighting an infection or fungus, or simply inflammation. It doesn't always mean cancer.
Take a deep breath and try to relax a bit. I'm glad you are having a PET scan this week. Do you have a nodule along with the lymph node activity? Did this show up on a routine screening exam, or were you experiencing symptoms?
@skm101 , You may want to wait to see what the PET scan shows before reaching out for a second opinion or transfer to one of the Mayo locations, but just in case you need it, here is a link to request an appointment: http://mayocl.in/1mtmR63
IF this is a cancer, there are also many well-respected cancer centers around the world. If you are in the US, the National Cancer Institute has a list of designated cancer centers here:
https://www.cancer.gov/research/infrastructure/cancer-centers/find
I had 2 surgeries since Oct and I was feeling different when breathing some. I had a routine Dr appt and mentioned it. She did blood work and I has a D-dimer of over 2000. She wanted at CT scan then. It showed a nodule in posterior right upper lobe, one inflamed Hilar lymph node and another questionable one. She now wants a PET scan but insurance is being difficult.
I'm so glad for you that yours is not cancerous. If I understand correctly, you had just abnormal lymph nodes, no nodule or mass. Is that correct?
@skm101 , You've been put through a lot since October, wow! A PET scan is a good next step to see how much activity there is in that nodule. Hopefully she can get that through your insurance company. Having insurance issues just adds to the stress.
I've had enlarged hilar lymph nodes related to cancer in 2020 and related to a fungus in 2023/2024. This past November, when scans showed the lymph nodes enlarged and a new 1cm nodule, we were all sure that the cancer had returned. After scans and biopsies, we know that my cancer is thankfully still under control!, and we're treating the fungus.