I'm Tired and Don't Want To Go On

Posted by dfb @dfb, Jan 9 12:37pm

Fifteen years ago I was put on very high levels of antidepressants for what now seems was transient depression brought on by terrible life style choices. Within a short period of time I became very manic. My manic behavior would destroy everything my wife and I had built. I destroyed our marriage, lost a billion dollar business and worst of all left my children without a father when I went to prison for an assault I committed during a psychotic episode.

Fifteen years latter the doctors have acknowledged that I most likely did not have Major Depressive Disorder and that the medications made me manic. Instead they say that I actually have Bipolar Disorder without mania, I just have profound depression. After doing hundreds of hours of my own research what became clear is that neither diagnosis fits.

In July I undertook the titration off of seven psych meds and seven side effect meds. My interventions are dietary changes and vigorous exercise. These two changes allowed me to, with my providers help, pretty much get off all of the meds I was on. In November I felt the best I have felt in twenty years. My physical and mental health providers were all pleased.

After Thanksgiving my sleep began to decline from seven hours a night to two hour chunks sporadically. After a couple of weeks of this I began to have panic attacks. I asked my providers to help with both and they declined. Then I got Covid and ended up in the hospital afraid I was going to try to take my own life.

To get me out of the hospital I was put on Lithium, Bupropion and Latuda. They have now added Buspar for the anxiety.

I am completely despondent. I do not believe my providers really know what's wrong with me, if anything. I have been put into a box that allows them to get reimbursed by the insurance company. Don't get me wrong I believe they care deeply about my well-being. It's just that that whole system is broken and everything is hit or miss.

After more research I have concluded that the insomnia was as a result of the testosterone replacement therapy I was on. I needed the TRT because of fifteen years of venlafaxine, which is know to decrease testosterone. That no one knew this simply adds to my despair.

I, like many of you, have fought my way through physical and sexual abuse, depression, substance abuse, numerous hospitalizations and prison. I have been prescribed more medications than I can even remember. I have had ECT, TMS and Ketamine therapy. Some how amidst all of ineffectual treatments I managed to have life. I was married for twenty years, have four beautiful children (who I have had no contact with for ten years). I built and sold a number of successful business and have worked hard to be a good citizen.

I am now faced with fighting through whatever is going on with me. I do not believe anyone knows for sure what is happening and what to do about it. It is quite possible that years of unnecessary medication has so altered my system that I will never be well. I've lost everyone and everything in my life that mattered to me. I exist moment to moment because I do not have a gun and as a felon getting one is not so easy.

I am simply done. I do not want to live anymore. I am sixty years old and all I have to look forward to is more fighting in every area of my life. I will die, just like everyone else. I see no reason to delay it any further.

What keeps me alive is a rule I have, not to do anything that will make my situation worse. I believe the only thing worse than suicide is a failed suicide. That said I would welcome death.

I'm just done!

Forgive me for ranting but I feel so completely alone.

I hope everyone finds the peace they deserve.

Interested in more discussions like this? Go to the Mental Health Support Group.

@dfb

I have received so much support on this board that I hesitate to write honestly about how I am doing. I also do not want to make anyone feel worse. I also want to be honest. So, I will try to report without influencing.

I am quite depressed. Seven on a scale of zero to ten. What that means to me is that I think about suicide all the time but am not prepared to risk making my life worse.

I am still quite anxious again, seven out ten. This is especially troubling as I have not had this kind of anxiety before.

I am not sleeping. I have no trouble falling asleep. I wake up every two hours. I never get more than two hours uninterrupted.

I do not believe my providers really know what to do. In fact my research has convinced me that no one really knows what to do. I do not believe they even know what is going on with me.

I believe the lack of sleep is feeding the anxiety and depression. I believe that very high level of medications I have been on for fifteen years are responsible for my sleep disturbances. My sleep problems started two years after being put on medication. My doctor actually said "two hours at a time is fine as long as you are getting a total of eight". My providers are trying to treat the depression with Lithium and the anxiety with Buspar. They have me taking Seroquel for sleep and it is not working. I do not intend on continuing it as it has terrible side effects. I take Benadryl for anxiety because they will not give me Ativan any more, even though they had me on three milligrams a day until I stopped it. I have requested .5 twice a day. No one is addressing the sleep disturbances. I believe that the depression and anxiety will decrease or perhaps even go away if I can get get a good nights sleep.

I do not believe the life has any intrinsic meaning. I believe that my best years are behind me. I believe that very few people would be negatively affected by my death. My friend would miss me. My mother could mourn me. My sisters would be relieved. My ex-wife would be relieved as the truth of our parting would be less likely to come out. My children have not had any knowledge of me for over ten years. Reuniting with their disgraced dad is probably not high on their list. And my ex-wife and children would get my disability income, which is actually quite substantial. So all in all my death wouldn't even be a blip in the universe.

I am trying to get a second opinion on my condition but as many of you know getting an appointment with a mental health provider is not easy, unless of course one goes to the emergency room and waits, untreated, to get into a facility. I will never go back to the emergency room. It's like going to the local jail and asking them to lock me up.

Unfortunately I do not have access to a quick and painless way to end my life. I try to follow a rule of not doing anything to make my situation worse. Given that rule, my only option is to keep trying to get well by working with the broken mental health care system.

Everyone on this board has been incredibly supportive. I want very much to post positive messages and I will continue to do so were I have something to offer. In the mean time I, like so many others will shuffle through my day hoping my life comes to an end soon.

My everyone live in good health and peace.

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I am reading Anxiety Rx by Dr. Russell Kennedy. You might like his take. It is helping me.

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@dfb This is m first post, new to this site.
Your kindness to others is something I try to do as well. Your original post said so many things that are true. Some health providers mean well, for sure, but the big picture is broken. Insurance game - they rule the health world. One thing that Really stood out to me was the comment of yours that I have quoted below. For me when I had a brief reprieve from suffering only to go back to suffering it was devastating. How did that feel for you when you lost that feeling of being better only to suffer again?
“ My interventions are dietary changes and vigorous exercise. These two changes allowed me to, with my providers help, pretty much get off all of the meds I was on. In November I felt the best I have felt in twenty years.”

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@sphb

@dfb This is m first post, new to this site.
Your kindness to others is something I try to do as well. Your original post said so many things that are true. Some health providers mean well, for sure, but the big picture is broken. Insurance game - they rule the health world. One thing that Really stood out to me was the comment of yours that I have quoted below. For me when I had a brief reprieve from suffering only to go back to suffering it was devastating. How did that feel for you when you lost that feeling of being better only to suffer again?
“ My interventions are dietary changes and vigorous exercise. These two changes allowed me to, with my providers help, pretty much get off all of the meds I was on. In November I felt the best I have felt in twenty years.”

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@sphb welcome to Mayo Clinic Connect and congratulations on your first post! This discussion “I’m Tired and Don’t Want to Go On” is a bit daunting isn’t it? You mentioned insurance and referred to dietary, exercise and meds interventions quoting another member. If you don’t mind replying, what interventions have you had experience with? We are all looking for a “reprieve from suffering”. Would you be willing to share?

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@sphb

@dfb This is m first post, new to this site.
Your kindness to others is something I try to do as well. Your original post said so many things that are true. Some health providers mean well, for sure, but the big picture is broken. Insurance game - they rule the health world. One thing that Really stood out to me was the comment of yours that I have quoted below. For me when I had a brief reprieve from suffering only to go back to suffering it was devastating. How did that feel for you when you lost that feeling of being better only to suffer again?
“ My interventions are dietary changes and vigorous exercise. These two changes allowed me to, with my providers help, pretty much get off all of the meds I was on. In November I felt the best I have felt in twenty years.”

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I wish I had something significant to share, but the reprieves are only for a couple of days. Get hopes up and then it’s like a carpet ripped out from under me when it’s back to the new “normal” in life.
Off topic but On a positive note:
Yesterday I had an appointment. When I left I forgot my purse in the entrance room. I never ever do that (that is one of my OCDs), but I was so distracted from being distraught and upset. A nice man caught me just in time as I was in the elevator with the door closing. And handed it to me. I found out later in the day that the nice man is actually homeless. Nothing was taken from my purse like cash etc. I’m so touched by this, I will never forget it.

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@sphb

@dfb This is m first post, new to this site.
Your kindness to others is something I try to do as well. Your original post said so many things that are true. Some health providers mean well, for sure, but the big picture is broken. Insurance game - they rule the health world. One thing that Really stood out to me was the comment of yours that I have quoted below. For me when I had a brief reprieve from suffering only to go back to suffering it was devastating. How did that feel for you when you lost that feeling of being better only to suffer again?
“ My interventions are dietary changes and vigorous exercise. These two changes allowed me to, with my providers help, pretty much get off all of the meds I was on. In November I felt the best I have felt in twenty years.”

Jump to this post

My father always said “if you don’t have anything nice to say don’t say anything at all”. With that in mind I am not well. I feel hopeless and helpless as I and my providers search for answers.

May you live in peace and good health.

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@lizziel1

I don’t have any clever words for you. Just know that I think the same, and understand what a struggle it is. The week of Christmas I even put a tank of Nitrogen gas in my Amazon cart. Ugh!
I guess the only thing that keeps me here is the fact I’m not done. I have books I want to read, fish I want to catch, foods I want to taste, and nature I want to explore with my dog.
Notice all of these are solitary experiences. I just am not emotionally cut out to be in a world of people. You sound like a very sensitive person too. I think we struggle more than the rest. ❤️

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@lizziel1 read your Jan 15 post. I like that you seem to be focusing on things you still want to enjoy doing in this life, things you still want to experience. That was encouraging to read. Thank you. Yesterday a family member told me to try and start focusing on positive things and let less of negativity (like watching the news) into my life. Won’t happen overnight, baby steps…
Hope you find some calmness today. Animals / nature are wonderful creations - enjoy.

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@cehunt57

@sphb welcome to Mayo Clinic Connect and congratulations on your first post! This discussion “I’m Tired and Don’t Want to Go On” is a bit daunting isn’t it? You mentioned insurance and referred to dietary, exercise and meds interventions quoting another member. If you don’t mind replying, what interventions have you had experience with? We are all looking for a “reprieve from suffering”. Would you be willing to share?

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@cehunt57 I was coming off of a previous day of pure stress and suffering so my response to you yesterday wasn’t complete. For me reprieves come from Bible verses- these can be very very calming.
Psalm 94:19 “ when anxieties overwhelmed me, you comforted and soothed me”
I hope that may be helpful to someone.

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I am reading Anxiety Rx by Dr. Russell Kennedy. You might like his take. It is helping me. His journey to better mental health included a psychotic father, ocd, trips with hallucinogenics, LSD etc., He became an MD, practiced and then stopped to write. His take is interesting and worth a shot at helping you and anyone heal some of the past. He believes there is as much or maybe even more of a physical component as there is mental to mental health issues. Good luck and stay on here. You have support.

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Thank you for the recommendation. I will read the book. I have never had anxiety before. My issues have always been profound depression. I developed anxiety when I discontinued Venlafaxine. After three months of no sleep and relentless anxiety my provider put me back on it.

Within two days the anxiety was so great I’ve not been able to leave my house. I looked it up and surprise, surprise, starting Venlafaxine commonly causes increased anxiety for a couple of weeks. I don’t remember this from fifteen years ago, but considering I’ve never had anxiety before I hoping this is transient and will subside shortly.

I have lorazepam that I can take but that is rationed.

The worst thing for my health is I’ve not been able to go to the gym and exercise because of the crushing anxiety. I usually exercise two hours a day. I’ve not been able to work either.

I’m used to being depressed. Depression and anxiety makes me urgently suicidal. I hope this isn't a lasting condition.

May you live in peace and good health.

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@dfb

Thank you for the recommendation. I will read the book. I have never had anxiety before. My issues have always been profound depression. I developed anxiety when I discontinued Venlafaxine. After three months of no sleep and relentless anxiety my provider put me back on it.

Within two days the anxiety was so great I’ve not been able to leave my house. I looked it up and surprise, surprise, starting Venlafaxine commonly causes increased anxiety for a couple of weeks. I don’t remember this from fifteen years ago, but considering I’ve never had anxiety before I hoping this is transient and will subside shortly.

I have lorazepam that I can take but that is rationed.

The worst thing for my health is I’ve not been able to go to the gym and exercise because of the crushing anxiety. I usually exercise two hours a day. I’ve not been able to work either.

I’m used to being depressed. Depression and anxiety makes me urgently suicidal. I hope this isn't a lasting condition.

May you live in peace and good health.

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@dfb What can you create in your safe space that would mimic the gym, for you? Walking/jogging in the neighborhood? Using a mini-rebounder? Lifting gallon jugs in various fill levels to take the place of weights? Calisthenics? Perhaps you can do this while your anxiety is preventing you from getting to some of the places you want to go to?
Ginger

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