Pancreatic Cancer Group: Introduce yourself and connect with others

You can get started by reading, hope you will find this general information a good start helpful. Hope your treatment goes well and that you will share your story with our group. I have found I learned so much from everyone who participates here.
PANCREATIC ACTION NETWORK
https://pancan.org/facing-pancreatic-cancer/patient-services/?s_src=patient+services_google_adwords&s_subsrc=patient+services_goo
JOHNS HOPKINS MEDICINE
https://www.hopkinsmedicine.org/health/conditions-and-
diseases/pancreatic-cancer/pancreatic-cancer-treatment
AMERICAN CANCER SOCIETY
https://www.cancer.org/cancer/types/pancreatic-cancer.html
Just to get you started with your reading. I think everyone who is part of this group would agree that you establish a relationship with a pancreatic cancer center of excellence, if you aren't close enough to be treated at one, then at least to have regular evaluations for an opinion as to how the treatment is going.

That is great news! I am starting chemo 3/4 for similar findings. I am going to Moffitt and very interested in clinical trails vs. Folfirinox or the new cocktail that was approved by the FDA this week. I am concerned about quality of life during chemo as I am a widow and right now have no symptoms.
Has anyone else spoken with their oncologist about NALIRIFOX? Or The MRNA Vacine? They all seem to want to stay with the “protocol”.

I can't speak to the vaccine, but I did ask my oncologist last week about Nalirifox. FYI, I'm currently on a reduced dose of Folfiri (no oxaliplatin). My MD does not like the liposomal irinotecan, which he says has many more side effects than the regular irinotecan. He also said the Nalirifox regimen is more expensive than Folfirinox. So we agreed that I'll stay with what I'm doing now. I'm responding well, so I'm fine with that. As I noted elsewhere on this board, it seems like every MD has an opinion about everything when it comes to pancan. And I'm not any sort of medical professional, just a patient. So I would urge you to take these comments with a grain of salt; they could certainly guide you to ask more questions of your MD, but don't necessarily take them as gospel until you discuss them.

Tumor in the pancreas

I don’t remember where the thread was about maintance chemo. I asked my dr about it and he said that it hasn’t shown to extend life expectancy. I now have two lesions in my lungs. He says we don’t have to rush into chemo unless I want to. Says it grows slowly so we can watch it over the next few months.

Thank you. 🙏

I meant to say where are you being treated?

Northside Hospital in Atlanta GA

For those newly diagnosed, the "questions to ask your oncologist" in these two threads might also be useful:
https://connect.mayoclinic.org/discussion/newly-diagnosed-questions-to-ask/
and
https://connect.mayoclinic.org/discussion/which-questions-should-i-ask-my-surgeon-i-think-whipple-is-likely/
Best wishes to all who have been recently diagnosed. Have hope -- it's not necessarily the death sentence it's so often portrayed as.

Just got diagnosed of feb.15 2024. My routine bloodwork of Nov. 2023 was perfect. Came on quick. Wasn't fe3eling great for about a month. skin turned yellow on the eve of 2/14. I never knew that all of these crazy symptoms were related, itching, unable to sleep, bad gas and gas pain, fatigue, uHadrine the color of very strong tea.Had ultrasound. MRI, cat scan, stent put in and biopsies. Has not spread yet, planning chemo befor surgery. Fingers crossed every day. xxgl ev1!