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Concerned about medications for ET JAK2

Posted by carefor @carefor, Apr 24, 2023

I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists put me on hydroxyurea with 500mg daily no change after two weeks so he added blood thinner 5mg 2xday has anyone else been put on blood thinner?

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ger63 | @ger63 | Feb 18 7:41am
In reply to @healedbytheblood0119 "What is ASA? Also I’ve never heard of Lumbrokinase." + (show)
@healedbytheblood0119

What is ASA? Also I’ve never heard of Lumbrokinase.

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Asa is an abbreviation for aspirin. Typically a low dose of 81 mg is taken we Et. But of course always check one’s medical doctor,

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eileen11108 | @eileen11108 | Feb 18 7:55am

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I am already on a blood thinner for AFib. In fact, I am not allowed to take aspirin.

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sregiani | @sregiani | Feb 18 9:16am
In reply to @winmil99 "I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x..." + (show)
@winmil99

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x 50 yr, active, run, walk, yoga daily. They suggested HU, I didn't want to take, My Hematologist said ok, just ASA for now. my ptl run between 500-600. Have been up due to covid infection. waiting 1 month for recheck. meanwhile , a Naturopathic Dr suggest I take lumbrokinase. Has anyone tried this med? Did It lower plts?

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Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc. So far, I am only on a daily baby aspirin.
71 yo female, ET/w JAK2 diagnosed a year ago. Holding in the low 600’s.

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hlyonsrn | @hlyonsrn | Feb 25 1:53pm
In reply to @healedbytheblood0119 "What is ASA? Also I’ve never heard of Lumbrokinase." + (show)
@healedbytheblood0119

What is ASA? Also I’ve never heard of Lumbrokinase.

Jump to this post

ASA is aspirin

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preacherswife1977 | @preacherswife1977 | Mar 23 8:43pm

Well I have found out I cannot take Hydrea or Anagralide....What's next?

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