Initially I was diagnosed with ET. This diagnosis was made based on my high platelets and a suspect bone marrow biopsy that was not a good specimen. So I trusted my doctor and went along with treatment, which at first was phlebotomy and baby aspirin. My hematocrit was 48 and platelets would not be controlled so I was soon placed on Hydrea. I always felt better after a Phlebotomy which would reduce my hematocrit to around 30. Was like letting some air out of an overfilled balloon. My white count also was not in control. So I decided it was time to see an MPN Specialist. I found one at the University of Michigan. He changed my diagnosis to PV. After 10 years on Hydrea, it just was no longer controlling much so I was fortunate to start Jakafi. It’s much better at controlling my numbers and I feel so much better. I still must take 500mg of Hydrea as well to help control my platelets which were over a million even while taking Jakafi. So in my case I guess you can say I have both ET and PV but after an additional BMB my doctor concludes that my diagnosis is PV. Find an MPN Specialist… even if you must drive a distance. It’s important. You can still maintain your local doctor but having a specialist consult in your case will help.