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@marylou329

I have MDS and MGUS (which is the precursor to MM). I am going to be scheduled for a stem cell transplant abd Oncologist said that it would also get rid of the MGUS. I will be starting on decitabine in the next 2 weeks. Can you tell me what side effects you had? I know everyone is different, but just curious so I will know what to look out for. Thank You

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Replies to "I have MDS and MGUS (which is the precursor to MM). I am going to be..."

Hi Marylou,
I have been taking decitabine together with venetoclax throughout my treatment so I am not sure exactly which side effects are caused by decitabine. I believe my most serious side effect (neutropenia and consequent immunosuppression) is attributable to venetoclax. At times I do have fatigue, constipation and shortness of breath with exertion but I think those things could be because of either drug and/or because of the AML itself. Good luck in the weeks ahead. I hope your treatment brings you relief from all you are struggling with.