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DiscussionEssential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (187)Comment receiving replies
Replies to "I'm sorry as I'm new to this site. Are you a mentor? I have many medical..."
Hi Pamela. (@rubles) Yes, I am a mentor primarily in the Blood Cancer and Conditions group, along with Stem Cell/Bone Marrow transplants and a few other groups when needed.
I tagged you in a comment earlier only because a new member asked about having both PV and ET at the same time. I know you’d asked about that same condition a couple months ago so I tagged you in case there was something you could offer from your experience. But there’s no need for you to respond to that message if you don’t feel up to it. There is never any pressure here. ☺️. We’re just like a big ol’ coffee klatch, sitting around the table chatting away.
I’m so sorry to hear that you aren’t getting the medical care you need. No wonder you feel overwhelmed with your health situation. I completely understand how frustrating and disparaging that can be! I also understand that some days just plain stink and it’s tough to remain positive. It may really help to find at least one little thing to look forward to each day. It can be something as simple as having a lovely cup of tea in the morning out of a special tea cup. Or buying a little bouquet of flowers at the grocery store, sitting down to do a favorite craft or artwork. Those little moments can jumpstart us to brighter spirits.
I hope some ‘feel good’ days are ahead of you! I’m here anytime you want to talk. Hugs, Lori.