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Prioritizing relationships

Caregivers | Last Active: Jun 27 12:17pm | Replies (13)

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@chris20

Yes, I have a similar situation, which has been going on for nearly nine years now. Family members initially were supportive, but gradually distanced from us, due in part to logistics, but mostly because of discomfort at seeing their mother mentally deteriorating cognitively and memory wise. It's a 24/7 situation for me, as she is unable to respond appropriately to emergency or challenging situations of any kind. She has occasional episodes of tachycardia, dysphasia and panic attacks if I am not near her constantly. We have few friends and our 4 children and numerous grandchildren are too busy to take her for even a few days so can get things done, or so I can go to caregivers support groups. I have started singing and playing gospel music for a couple of nursing homes from time to time, and that helps, and she goes with me. But most of the joy of frequent get togethers with family and friends is lacking. My wife is ok with that, in fact it bothers her to even accompany me to the nursing home visits or church and Bible study. So I am stuck in a no win situation it seems. I don't know what to suggest other than grab some time for yourself and time with friends you have left, when you can.

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Replies to "Yes, I have a similar situation, which has been going on for nearly nine years now...."

Is she eligible for any form of respite care through medical insurance or Area Council on Aging programs? Even an afternoon a week, so you can pursue your interests would be beneficial.