1. < Autoimmune Diseases

Miserable nerve pain

Posted by marilyncarkner @marilyncarkner, Feb 13 5:22am

No sleep because of undiagnosed nerve pain. Feeling miserable .. I have PMR which just flared a 3 mg and my Rheumy bumped me up to 10mg. My thoughts are either internal shingles(had the vaccine) or Brachial pruritis ..Taking 6 Benadryl pills each day .. there is no rash
I spent 2 weeks down south with lots of sunshine could be a trigger. I also apply Zostrax
Any ideas or info on pain control or thoughts on the connection to PMR?

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donnavanpelt | @donnavanpelt | Feb 15 11:18am

I'm so glad you're interested. I should mention I had side effects but I'm not the norm so I need to get the doctors feedback before doing Botox again. My side effects were congestion which triggered vertigo and balance issues but this happens when I'm congested and I have a lot of allergies/sensitivities. I had a few others but I still think it's worth trying. Let me know how it goes and please use my reply button so I don't miss your response. I wish you all the best.

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donnavanpelt | @donnavanpelt | Feb 15 8:41pm
In reply to @nemo1 "Thank you for the great idea! My old neurologist wanted to do Botox on my migraines(in..." + (show)
@nemo1

Thank you for the great idea! My old neurologist wanted to do Botox on my migraines(in 2021). I told her I had bell palsy 2x (years ago/long time) and didn’t feel comfortable with Botox. I’m not sure. But if it were the only treatment that is “safe” enough for me I would try it. I’d need it in both feet/legs (back?) so thank you so much. When I see pain mgmt dr at the end of the month I’ll ask her about Botox. 🙂

Jump to this post

I posted this earlier but I don't see it. I will try it again...

I'm so glad you're interested. I should mention I had side effects but I'm not the norm so I need to get the doctors feedback before doing Botox again. My side effects were congestion which triggered vertigo and balance issues but this happens when I'm congested and I have a lot of allergies/sensitivities. I had a few others but I still think it's worth trying. Let me know how it goes and please use my reply button so I don't miss your response. I wish you all the best.

REPLY
1 reply
Nemo1 | @nemo1 | Feb 16 9:16am
In reply to @donnavanpelt "I posted this earlier but I don't see it. I will try it again... I'm so..." + (show)
@donnavanpelt

I posted this earlier but I don't see it. I will try it again...

I'm so glad you're interested. I should mention I had side effects but I'm not the norm so I need to get the doctors feedback before doing Botox again. My side effects were congestion which triggered vertigo and balance issues but this happens when I'm congested and I have a lot of allergies/sensitivities. I had a few others but I still think it's worth trying. Let me know how it goes and please use my reply button so I don't miss your response. I wish you all the best.

Jump to this post

Thank you so much Donna. I will let you know how it goes!

REPLY
pitou | @pitou | Feb 16 1:27pm
In reply to @pacer3702 "Have you tried 5% lidocaine patches available by prescription? I place them on the tops of..." + (show)
@pacer3702

Have you tried 5% lidocaine patches available by prescription? I place them on the tops of my feet where the epidermis is thinner to promote absorption of the drug. The patches control my nerve pain better than gabapentin and I don't have as much systemic exposure to a powerful drug.

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I’m currently in the process of trying to get 5% lidocaine patches, for nerve pain, in my feet. My insurance won’t allow me to get them. My dr is on 3rd appeal. I don’t get it, they don’t cost a fortune. Does anyone know what to do, if they deny the 3rd appeal?

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4 replies
Nemo1 | @nemo1 | Feb 16 6:18pm
In reply to @pitou "I’m currently in the process of trying to get 5% lidocaine patches, for nerve pain, in..." + (show)
@pitou

I’m currently in the process of trying to get 5% lidocaine patches, for nerve pain, in my feet. My insurance won’t allow me to get them. My dr is on 3rd appeal. I don’t get it, they don’t cost a fortune. Does anyone know what to do, if they deny the 3rd appeal?

Jump to this post

Hi!

Have you considered the 5% ointment instead of the patches? Maybe they could approve that instead? It’s very helpful.

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1 reply
pitou | @pitou | Feb 16 7:53pm
In reply to @nemo1 "Hi! Have you considered the 5% ointment instead of the patches? Maybe they could approve that..." + (show)
@nemo1

Hi!

Have you considered the 5% ointment instead of the patches? Maybe they could approve that instead? It’s very helpful.

Jump to this post

I haven’t. I wasn’t aware of it. I’d had the patches before, with another insurer, so I know they help. I just don’t understand.
Thanks for your help.

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1 reply
Nemo1 | @nemo1 | Feb 16 8:04pm
In reply to @pitou "I haven’t. I wasn’t aware of it. I’d had the patches before, with another insurer, so..." + (show)
@pitou

I haven’t. I wasn’t aware of it. I’d had the patches before, with another insurer, so I know they help. I just don’t understand.
Thanks for your help.

Jump to this post

The ointment is just another delivery option. I’ve included a picture of it. Feel better. Hope it works out.
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3 replies
marilyncarkner | @marilyncarkner | Feb 17 8:58am
In reply to @nemo1 "The ointment is just another delivery option. I’ve included a picture of it. Feel better. Hope..." + (show)
@nemo1

The ointment is just another delivery option. I’ve included a picture of it. Feel better. Hope it works out.

Jump to this post

Thanks so much for this

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1 reply
Nemo1 | @nemo1 | Feb 17 10:51am
In reply to @marilyncarkner "Thanks so much for this" + (show)
@marilyncarkner

Thanks so much for this

Jump to this post

You are welcome! ♥️

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harley22 | @harley22 | Feb 17 10:58am
In reply to @pitou "I’m currently in the process of trying to get 5% lidocaine patches, for nerve pain, in..." + (show)
@pitou

I’m currently in the process of trying to get 5% lidocaine patches, for nerve pain, in my feet. My insurance won’t allow me to get them. My dr is on 3rd appeal. I don’t get it, they don’t cost a fortune. Does anyone know what to do, if they deny the 3rd appeal?

Jump to this post

I use over the counter salon pas pain patches on my sore feet spots and they do help.
You get 60 patches for about $10.00 and I apply them on my foot areas that hurt me.
They last about 7-8 hrs, and they really help when I’m in so much pain I can’t walk.

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1 reply
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