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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (187)Comment receiving replies
Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV and ET. I recently replied to two other members who share your diagnosis, @rubles and @taisaint.
Here are the links to both similar replies where you’ll find information on the Myeloproliferative Disorder that causes PV and ET.
https://connect.mayoclinic.org/comment/950331/
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https://connect.mayoclinic.org/comment/967884/
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These were found in this discussion group:
Essential Thrombocythemia: Looking for information and support
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-4/
I hope the information is helpful! Were you having symptoms prior to being diagnosed?
Replies to "Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV..."
No symptoms at all. Found on routine blood work. It’s such a scary situation. My mother had lymphoma and passed at age 56. Talking to my oncologist about it and he said you both had blood disorders. He does not call it a blood cancer. Said I should live to be 80. I freaked out I’m already 65 this is not long enough.
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I'm sorry as I'm new to this site. Are you a mentor? I have many medical problems and so I talk about some of them depending which one is worse that day etc. I don't talk much about then as they overwhelm me and I don't get medical care I need or there's always a problem. I'm not positive about it all to be honest. I hope you feel better and have more good days than sick ones. Thank you for responding . Pamela