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Concerned about medications for ET JAK2

Blood Cancers & Disorders | Last Active: Mar 23 8:43pm | Replies (15)
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@winmil99

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x 50 yr, active, run, walk, yoga daily. They suggested HU, I didn't want to take, My Hematologist said ok, just ASA for now. my ptl run between 500-600. Have been up due to covid infection. waiting 1 month for recheck. meanwhile , a Naturopathic Dr suggest I take lumbrokinase. Has anyone tried this med? Did It lower plts?

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Replies to "I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x..."
mdterp76 | @mdterp76 | Feb 17 7:14am

Interesting. I looked up lumbrokinase at NIH. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3876685/#:~:text=Lumbrokinase%20mechanism%20of%20action.,viscosity%2C%20and%20reducing%20platelet%20aggregation.

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IKEALover | @healedbytheblood0119 | Feb 17 5:30pm

What is ASA? Also I’ve never heard of Lumbrokinase.

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sregiani | @sregiani | Feb 18 9:16am

Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc. So far, I am only on a daily baby aspirin.
71 yo female, ET/w JAK2 diagnosed a year ago. Holding in the low 600’s.

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