← Return to Primary Cutaneous Gamma Delta T Cell Lymphoma
DiscussionPrimary Cutaneous Gamma Delta T Cell Lymphoma
Blood Cancers & Disorders | Last Active: Aug 30 5:09pm | Replies (27)Comment receiving replies
Replies to "Hi! Thank you for responding. I just had my PET Scan this week, awaiting the follow..."
Hey Laurie - sorry for the delay! We have been going through chemotherapy since January for Gamma Delta T Cell and the symptoms you are detailing are similar to my wife. Her rashes are predominantly on her lower legs but began to rapidly increase towards the end of ‘23 which made us go get them looked at again. The Fevers occurred 3-4 times a week and exhaustion was a tough symptom. We met with Mayo and they walked us through the cancer and it is extremely rare and very frustrating because you can’t google search it and find the results you want. My wife is undergoing CHOP therapy and we have 6 rounds every 21 days. It’s a hardcore treatment but we don’t want to risk this cancer hanging around any longer. We have done 3 rounds so far and the doctors stated she is medically responding to treatment which was the best news we got in awhile. We go next week for our mid way PET SCAN and round 4 of Chemo. Unfortunately the only long term cure for this is a quick follow up with Allogeneic Stem Cell Transplant, which we are looking to do once she is in full remission sometime this summer. That’s a whole other experience we are learning about. Happy to answer any other questions you may have!