← Return to Primary Cutaneous Gamma Delta T Cell Lymphoma

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@laurie9434

Hi! Thank you for responding. I just had my PET Scan this week, awaiting the follow up at the local oncologist. That's at the end of this month. I've been switched to a stronger Anti-fungal which I take twice a day...but, that's only to try and keep the Candida we can't get rid of in check. I am not receiving any treatment for the Lymphoma as of right now. I think they aren't going to do anything for me until I'm seen at Moffitt. Why we can't get rid of the Candida is the big question. The ID doctor, I believe, is now going with until they treat the lymphoma, the Candida is not going away. I haven't seen any info on people who were diagnosed because they had a resistant Candida infection. I don't even know what that means for the diagnosis, much less the treatment. Now, in hindsight, I have had weird rashes for a few years, including one that started on my upper back went down under my armpit and across my chest. It was at the beginning of Covid and I had a televisit and said to have Shingles. I'm beginning to think that was not Shingles. The rashes have all been so weird that I have documented them all with photos. I keep getting a red butterfly rash on my face, then it goes away. Needless to say, every blood test known has been done...it wasn't Lupus. Sorry I'm dragging this on. it's just so frustrating!!

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Replies to "Hi! Thank you for responding. I just had my PET Scan this week, awaiting the follow..."

Hey Laurie - sorry for the delay! We have been going through chemotherapy since January for Gamma Delta T Cell and the symptoms you are detailing are similar to my wife. Her rashes are predominantly on her lower legs but began to rapidly increase towards the end of ‘23 which made us go get them looked at again. The Fevers occurred 3-4 times a week and exhaustion was a tough symptom. We met with Mayo and they walked us through the cancer and it is extremely rare and very frustrating because you can’t google search it and find the results you want. My wife is undergoing CHOP therapy and we have 6 rounds every 21 days. It’s a hardcore treatment but we don’t want to risk this cancer hanging around any longer. We have done 3 rounds so far and the doctors stated she is medically responding to treatment which was the best news we got in awhile. We go next week for our mid way PET SCAN and round 4 of Chemo. Unfortunately the only long term cure for this is a quick follow up with Allogeneic Stem Cell Transplant, which we are looking to do once she is in full remission sometime this summer. That’s a whole other experience we are learning about. Happy to answer any other questions you may have!