I am a retired/disabled optometrist. I have just been diagnosed with Lipo-Lymphedema. I will be going for an evaluation for HSD/hEDS soon. I have always had dry eyes, was a -4.50 myope before cataract surgery, and had floppy eyelids. In addition, I always felt I had "soft" corneas because my vision and corneal curvatures varied. I also had phobias that were hard to pin down because of the variabililty. I did not have keratoconus. When I was practicing, I was taught that floppy eye lid syndrome was a sign of possible Obstructive Sleep Apnea. As the years went by I also noticed a change in the appearance of the optic nerves and visual field changes of some of these patients. I'd love to see research done on the ocular signs and symptoms of these connective tissue disorders. As an optometrist I was able to notice things that enabled me to suggest further evaluation with other health care professionals. If more people can be diagnosed earlier, some pain and frustration might be avoided.

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