← Return to No Doctor can figure out what is wrong with me

Discussion

No Doctor can figure out what is wrong with me

Infectious Diseases | Last Active: Feb 14 8:15pm | Replies (34)

Comment receiving replies
@j77

Thankyou so much for responding!Someone else had mentioned MCAS too.It is definitely possible that it is involved in what is going on with me.I would not be surprised if the Pfizer Vaccine set this off too.I did not have a booster,but I had the Pfizer vaccine a year before this came on,but it is possible maybe the iron infusion/covid and the vaccine made my body go haywire.I already have Hashimito's and my immune system is not the Best so it would not take much.The lack of strength in my diaphram/sternum where it is supposed be pushing your belly down is just not there anymore.My belly has absolutely no strength either.I guess the signals are not working properly.It is so bizarre and I feel like the vaccine or covid are the only thing that could bring something that weird on.No Doctor I have seen understands what it is because they have not seen anything like it.It is something with the muscles and nerves throughout my body,but it also feels like I am being poisoned everyday.I don't know if the feeling of being poisoned could be the MCAS.I had tests run through an infectious diseases doctor.He was testing me for èverything including Myasthenia Gravis.An antibody for that specific test came back borderline,but labcorp did further testing and they said it was negative.He told me that he would have to diagnose me with CFS even though all of my symptoms don't match up.I think CFS is a real disease,but that is definitely not what I have.I am definitely going get Dr. Baker's Book and try the diet.I am desperate right now.It is so scary when you are sick for years and they can't find much of anything.Even if this is a really weird autoimmune disease I know diet will play a huge part.Thankyou so much for all of your helpful information!I am glad that you are doing better!

Jump to this post


Replies to "Thankyou so much for responding!Someone else had mentioned MCAS too.It is definitely possible that it is..."

You are very brave and never doubt it! It is so lonely and isolating to know something is wrong and have no answer! I just shared the same w a very sick woman whose glucose are frightening and after tons of tests no answers. She eats a lot of carbs and little protein and not much beef at all. She’s going to flip to beef and no carbs and see how she fares w the glucose. ‘We are what we eat’ is very true and beefing up our lives may save them! I just ate a lovely bowl of hamburger 93% fat free and I use Hughes original BBQ sauce which is gluten free and sugar free and tastes like ketchup! I try to make digestion as easy for my body as possible! I take excellent supplements from Dr Becky Campbells web site called Optimal Reset which I think stabilized my Mast Cell histamine imbalance and continue to. I am very grateful to her for creating this for herself. Her vegetarian type program of eating doesn’t agree w me at all! We with Mast Cell are all different so doctors have no handbook for any of us and we have to reach our answers individually. I can’t tolerate one thing with any kind of acid at all! Including Hyaluronic cream! And I absolutely could prior to the shots. It may be that your muscles are atrophied due to your immense fatigue and if you correct one possibly w beef you may have the energy again ! When I started caring about my disorganized closets or the mess in the garage, I was so grateful! That horrid depressing draining lethargy steals your will and is overwhelmed by brain fog! I will hope and pray you find relief! Don’t forget how brave you are! I know it and others do too! Happy Valentines!!! Terri