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HOCM & VFib amiodarone, sotalol,camzyos

Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 14 4:10pm | Replies (35)
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@meryl59

Hi curious how you know it’s non genetic ?
Are you in a REMS study and taking Camzyos? Any other meds?

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Replies to "Hi curious how you know it’s non genetic ? Are you in a REMS study and..."
jess51 | @jess51 | Feb 13 3:31pm

Hi Meryl-
My cardiologist sent a sample of my DNA to a lab in Finland (!) and the results showed no genetic markers for HCM though I definitely have the condition. I was diagnosed in my mid 60s ( I am now 72). Yes, I am in the Camzyos study and have been taking it for at least 9 months. For me, it is very helpful. It seems trickier as an older person to guage results - deciding what is aging and what is HCM!

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katiekins | @katiekins | Feb 13 4:36pm

I had all the thorough tests and all the echos booked monthly, extensive blood tests etc....they are very careful but its not for me.

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