1. < Blood Cancers & Disorders

Does anyone have chronic myeloid leukemia (CML)?

Posted by ilahiRameez @ilahi, Oct 25, 2023

Hi I am Rameez, 28 years old. I was diagnosed with chronic myeloid leukemia about 14 months ago. I take dasatinib tablets for the treatment. Almost an year went alright, lately I am feeling continues problems physically and emotionally. I am planning to take another opinion again. I would like to hear from someone who has the same condition and to know what medications or treatment they have done!?

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suzie71 | @suzie71 | Feb 2 10:53am

Do the Bone Marrow Biopsy so you know what is going on. 37years old is young, and this could be just an infection. The not knowing what it is will make you more anxious then getting the diagnosis of what it is. They thought I had a bad infection at first, and that is why they let it go until I had a few more blood tests. I hope all turns out good, and you both need to know clearly what is going on. Please keep me updated, and God Bless you Both.

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sonia85 | @sonia85 | Feb 4 1:09am

hello ilahiRameez @ilahi
How are you? hoping you are doing well
Can you please tell me how you know that diagnose with CML from first?
what about your LYMPHOCYTES AND NETROPHIL count?

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sonia85 | @sonia85 | Feb 4 1:21am
In reply to @sonia85 "Dear @suzie71 Hello dear Actually my husband made blood test before 25 days there was some..." + (show)
@sonia85

Dear @suzie71
Hello dear
Actually my husband made blood test before 25 days there was some abnormal things
Wbc ok
But lymphocytic high
And netrophil very low
So they made another test
The Lym was in range
But the lym % was high
As well neu 0.6
So they checked his liver it was ok
But now maybe we should make bone marrow test
So am very weirded about everything because no. Thing clear😓😓😓
Some doctors says that maybe only infection so am very fear
He is 37 year

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dear @suzie71
i will update you dear sure ,
could you please help me if you have old report send it to me or tell me how much be your lymphocytes and neutrophils?

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1 reply
suzie71 | @suzie71 | Feb 4 10:28am
In reply to @sonia85 "dear @suzie71 i will update you dear sure , could you please help me if you..." + (show)
@sonia85

dear @suzie71
i will update you dear sure ,
could you please help me if you have old report send it to me or tell me how much be your lymphocytes and neutrophils?

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Hi Sonia: All my numbers are in normal range. My Neutrophils are 2196, and normal range is 1500 to 7800. My Lymphocytes are 1692, and normal is between 850 to 3900 My wbc is 4.5. Now this is with the lab I use.
I will be going in a few weeks for my blood work to be done. Very hard to go by my numbers because they have been in normal range for over 20 years. I do still get anxious everytime I have to get tested, and that is a normal feeling also. Hope all goes well for treatment.

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phulwanik0611 | @phulwanik0611 | Feb 13 6:36am
In reply to @suzie71 "I had a blood test with a high WBC, and they repeated it two more times...." + (show)
@suzie71

I had a blood test with a high WBC, and they repeated it two more times. Everytime they did it it got highter. Doctor said the only way to find out what was going on was to have a Bone Marrow Biopsy. The results were CML They look at the whole break down of your blood results, and other tests are done also to verify diagnosis.

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What was your wbc count?

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phulwanik0611 | @phulwanik0611 | Feb 13 6:45am
In reply to @kimmy5 "Hello my name is Kim, I have recently been diagnosed with CML on 11/14/2023. I went..." + (show)
@kimmy5

Hello my name is Kim,
I have recently been diagnosed with CML on 11/14/2023. I went to the doctor for my routine physical/bloodwork at the end of October. I was told my WBC were elevated and I need to retest. The next call I received was different nurses and doctors from my primary care and Hematology. I’m currently taking Hydroxyurea, and waiting to receive Sprycel. I’m 52 never had any health problems my entire life. This is so shocking to me. I have to get a bone biopsy on Dec 1 and they’re doing it at the hospital under moderate sedation. I’m so terrified of the unknown. Could someone please tell me if this procedure is painful as it sounds. I appreciate this form I just found it. I will be praying for you all.

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Dear what was your wbc count?

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1 reply
kimmy5 | @kimmy5 | Feb 13 10:42am
In reply to @phulwanik0611 "Dear what was your wbc count?" + (show)
@phulwanik0611

Dear what was your wbc count?

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Hello, when I was first diagnosed it was 88. Now it’s back in normal range with the medication they put me on.

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1 reply
phulwanik0611 | @phulwanik0611 | Feb 13 10:47am
In reply to @kimmy5 "Hello, when I was first diagnosed it was 88. Now it’s back in normal range with..." + (show)
@kimmy5

Hello, when I was first diagnosed it was 88. Now it’s back in normal range with the medication they put me on.

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Ok..mine is at 11.67 and my peripheral blood smear says no blasts or abnormal cells seenn. It is ok?

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1 reply
kimmy5 | @kimmy5 | Feb 13 12:53pm
In reply to @phulwanik0611 "Ok..mine is at 11.67 and my peripheral blood smear says no blasts or abnormal cells seenn...." + (show)
@phulwanik0611

Ok..mine is at 11.67 and my peripheral blood smear says no blasts or abnormal cells seenn. It is ok?

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I’m sorry not sure I understand are you asking is your findings okay? If so, yes it’s great because if there is no Philadelphia Chromosomes or blast I believe you’re in remission. Unfortunately for me, my wbc’s are great but all my blood cells show the Philadelphia Chromosome. It’s okay though God has a plan and I’m just gonna keep praying and standing on my faith. I will keep you in my prayers as well.

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1 reply
phulwanik0611 | @phulwanik0611 | Feb 13 8:59pm
In reply to @kimmy5 "I’m sorry not sure I understand are you asking is your findings okay? If so, yes..." + (show)
@kimmy5

I’m sorry not sure I understand are you asking is your findings okay? If so, yes it’s great because if there is no Philadelphia Chromosomes or blast I believe you’re in remission. Unfortunately for me, my wbc’s are great but all my blood cells show the Philadelphia Chromosome. It’s okay though God has a plan and I’m just gonna keep praying and standing on my faith. I will keep you in my prayers as well.

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No i dont have CML...its just that my wbc have been on a little higher side(11..5 to 12) so m scared..i did get 2 pbs and all showed no abnormal cells or blasts..just normocromatic anemia..so i am asking the forum to get some help..my haematologists,all three are reassuring me that nothing directed to CML..BUT my anxeity is getting extreme

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