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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 days ago | Replies (840)

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@casgarcia

My 44 year old son had a huge monophasic synovial sarcoma surgically removed in October 2022 followed by 6 weeks of daily radiation. He was followed with PET CT every 4 months. Negative in September 2023 but positive for a new tumor in his right axilla and left lung in January 2024. Chemotherapy was advised and started 2 weeks ago. This is a rate cancer, 1 to 3 per million, but very susceptible to chemotherapy. Hoping for the best. So far, so good. He is being treated in Merida, Yucatan, Mexico where costs are 30 to 70% less but the medical expertise is excellent and personal.

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Replies to "My 44 year old son had a huge monophasic synovial sarcoma surgically removed in October 2022..."

I am so sorry to hear about you son. The surgery was bad enough and now this. I hope that he is tolerating the chemo and wish him the best. He is so young. I will be 82 in June. I feel good. Am scheduled for endoscopy and colonoscopy
in mid April. Last year I had a colon resection. Did not need anything after that as far as treatment, Stage one. I have a difficult time eating. I am never hungry. I worry about that.
How long will your son be on chemo? Please keep me informed of his progress. He will be in my prayers. Wishing him all good things for the future.