I hope you get good advice on your next steps. I stayed on Camzyos against my doctor’s recommendation to give up and have surgery. I was feeling so much better and had no side effects, even though my gradient was not improving. I was able to get an enzyme test through my family doctor to see how I metabolize the drug. Seems I need a higher dose. Went up to 15mg and finally the gradient went down by 50%! I’m praying this continues. I wish we were part of a study on longer term effects of Camzyos. I want to
be optimistic but always wonder what’s next! A new drug, afacamten, is awaiting approval. For people who don’t respond well to Camzyos. Maybe your doc knows about it. Hope you feel better.