Large granular lymphocytic leukemia (LGL) questions

I was diagnosed in March of 2023, with LGL, and recently have been put on Methotrexate, 20 mg per week, and it is a bit uncomfortable for the first 24 hrs. I stopped take turmeric and fish oil for a couple of weeks and am back on it now just wanted to see if there was a difference and there is! I am not going off of it again. I can feel the omega -3 doing its job alone with Turmeric. Going back to the Dr. on the 21st of February for another blood draw.

I was diagnosed in March of 2023, and was recently put on Methotrexate to raise my white count at 20mg per week and then will have another blood draw and see what will be done after that.

I appreciate your comments and the suspected cause. Some products can cause different blood cancers and I think those products should be taken off the market rather than just putting a caution label on them. Your condition being caused by Covid, is a surprised to me in that I didn't know that could happen. Wish you the best.

My wife’s experience was a successful treatment for lgl with cytoxan. Contact Dr Loughran at UVA in Charlottesville, VA. He “discovered” lgl in 1985, and has written the book on treatment options. Google “Loughran” to get to their website.

I recently went to my oncologist and told him the cause of my cancer a petroleum product and if he would agree with me and he said "you are a 77 year old man and you might be lying so nobody would believe you.' Doctors are not interested in the cause only the treatment. I received the same attitude from my LNP, and she said "the cause is a mute point", Doctors are not interested in preventing the cause just treating the problem. Just sharing my experience with you. Don't know who is interested in preventing the cause if you do please let me know.

Dear @marlow2
HOW do you feel now?
on any med ?

I have LGL, T-cell, and get a large red blood spot on my left forearm at times and it takes a long time to get rid of it using hydrocortisone does anyone know of a product that works faster than hydo to get rid of it? I have no external bleeding. Does anyone know the name of the condition? I think it maybe purpura and am not sure since I have know external bleeding. The red spot is probably cause by my low platelet count.

Is your Doctor aware?

Jumper 123, Well in any case, if a doctor told me I may be lying I would take great offense to the comment including my age. . I agree in many cases physicians are treating symptoms not the root cause and not just cancer care...My blood cancer is considered an orphan cancer ( rare and pharmacetical companies don't want to put the money into research) They don't know the cause and there is no cure although they can slow the progression which I'm grateful for. Overall, I find Doctors are overworked and treat symptoms and not the cause if there a known one. Do your own research, go on Youtube they have Doctors from well known institutions, MDAnderson, Mayo, Sloane etc who discuss latest treatment etc..Put your question in the search bar and then talk with your physician armed with information..If they don't allow you to be a partner in your care then consider if the relationship is a good fit..Good luck

Yes, and I was told to use cortisone 10, and it took about a month to get rid of the large red spot on my arm. I think that a person can try other product too, such as skin lotion or anti bacterial soap.