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HOCM & VFib amiodarone, sotalol,camzyos

Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 14 4:10pm | Replies (35)
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@jess51

I have agreed recently to be part of a study and have met with a cardiologist and some med research students. I'll let you know how that goes! My HCM is not genetic so cause is a mystery... O like the fact that a study means attention - and doesn't like that? I am curious if any of you fine folks also have non-genetic HCM? Happy year of the dragon!

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Replies to "I have agreed recently to be part of a study and have met with a cardiologist..."
katiekins | @katiekins | Feb 13 9:21am

My HOCM is also non genetic so all a mystery and diagnosed about 16 years ago. Camzyos just did not suit me and feel worse than before but we are all different. Good luck.

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meryl59 | @meryl59 | Feb 13 1:02pm

Hi curious how you know it’s non genetic ?
Are you in a REMS study and taking Camzyos? Any other meds?

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