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Essential Thrombocytosis: What amount of hydroxy do you take?

Blood Cancers & Disorders | Last Active: Apr 14 10:05pm | Replies (77)
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@kik1

I’m 56 and started in Nov with one pill a day. When I reached 842 that is when he put me on the medication. In Dec I was down to 542 so I’m curious what it will be this month. (A total of 3 months) I cringe 😬 every morning when I take the pill. Thankful there is something to help but feel like I’m slowly poisoning myself. I have tingling in my feet and I’m tired.
I have ET with the mutation gene JAK2. Anyway still adjusting to all of this, I was just completing my yearly check up last year.
Best to each of us!
KK

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Replies to "I’m 56 and started in Nov with one pill a day. When I reached 842 that..."
jroyer | @jroyer | Feb 13 9:33am

I try not to think of it as poison, especially when much of what we eat these days is probably worse. I take my pills at night. I have no idea if that’s better or worse—it’s just easier for me to remember. Maybe try to view that pill as another day above ground—like Pitbull said, “ Any day above ground is a good day!” ❤️

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