Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@delweb98

Hi happy to join . My hearing loss started 3 yrs ago in the right ear only. I got Widex hearing aids but after a few months they caused my to developed Hipercusus. Without the aids in I heard everything too loud. So I stopped using them and it took a few months to improve. Then I started to hear only my voice like I was talking with clogged ears but the sound of everyone else was normal and clear. I had eustation tube ballooning done with some improvement. I am interested to find a hearing aid that make sound normal. Any suggestions would help. Thanks

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Widex makes high quality hearing aids. To be helpful, though, all hearing aids must be fit properly. That takes expertise by the fitter. They also must understand variables their patients have if something isn't working right.

After you developed hyperacusis did the person who fit those hearing aids try to make adjustments for you?

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@joemd

I also use another free app. Caption call. It transcribes phone calls and when combined with the speaker option it’s very helpful. I’m also researching personal induction loops. Let me know how the apps work.

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Thank you so much for letting us know about Caption Call. I installed it and it works very well. I have used others that don't work in my apartment building with a call box out front. This one I tested right away and by golly it works fine! I can't hear on the cell phone with a CI and a Phonak hearing aid. I generally text everyone any more. I love technology and learning new things!

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My hearing is not great and wear hearing aids.
My problem has my hearing getting worse in left ear. I too sounds like my left ear is clogged when I all without my hearing aid. Is it because of my eudtstion tube.
Guess I better go back to ENT.

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I used Widex hearing aids until I got a Cochlear Implant. I had no trouble with hypercausis, except in certain circumstances and I suspect many deaf people have sounds that are normal to others and too loud to them. I also wonder whether it was the make of hearing aid or just the fact that you were using hearing aids. HAs come with many different dome shapes. Did you try different domes to see if they made any difference? I tried different ones at the beginning to find the ones that I thought were best for me. It's an expensive investment not to try to do everything you can to improve the situation. Good luck.

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@julieo4

Widex makes high quality hearing aids. To be helpful, though, all hearing aids must be fit properly. That takes expertise by the fitter. They also must understand variables their patients have if something isn't working right.

After you developed hyperacusis did the person who fit those hearing aids try to make adjustments for you?

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I bought expensive Jabra Enhance hearing aids as they were recommended for those with moderate to severe hearing loss and tinnitus. I've always had hyperacusis, like my mom, grandmother and daughter. At first I liked them as they were much sturdier than the ReSounds I had previously. But it seemed that no matter how I set the controls, being in ANY noisy place made it very difficult to hear conversations, and tinnitus would be worse afterwards. When I downloaded their app so I could control more things with my iphone, I noticed that I had to agree to certain terms before I could use those controls. Waaaay down at the bottom of these terms was the statement saying I was aware that these hearing aids could be problematic for people with hyperacusis ~ if the app picks up that the user is struggling to hear, it increases the volume, which can be uncomfortable and might make hearing worse. Buyer beware. The "hearing aid specialist" should have known that. Unfortunately, but the time I figured out what was going on and got an appointment with the specialist, the 100 day money back warranty had expired. Up the creek without a paddle, and I only use them for small gatherings in a quiet place or at appointments at the bank or a doctor, where I have to keep saying,"I'm sorry,could you please repeat that? I'm hard of hearing and these hearing aids don't work well with masks on and a plastic shield between us." We do what we have to do, but it's discouraging and sometimes anxiety provoking. Talking with soft voiced professional people who use speaker phones or less that stellar headsets is even worse. I have to have someone else talk to a person like that if it's important, and translate for me. Wishing everyone who struggles with hearing issues the best of luck. My compassion for those who deal with these issues is immense.

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@arieswoman

Thank you so much for letting us know about Caption Call. I installed it and it works very well. I have used others that don't work in my apartment building with a call box out front. This one I tested right away and by golly it works fine! I can't hear on the cell phone with a CI and a Phonak hearing aid. I generally text everyone any more. I love technology and learning new things!

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Sometimes caption call is scatterbrained! I also use my Bose noise, cancellation, headphones, that I connect to my iPhone with a wire. I’ll take out my hearing aids prior to using the Bose headphones. The audio quality is exceptional.

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@tmelin

I tried AVA this morning at coffee with some friends at the mall. It worked well but noticed it got confused sometimes, I think because of loud surroundings and music. Thanks for your research.

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I was also advised that live captioning is available on the iPhone 11 and above. The respondent felt it was superior to Ava. I am anxious to try it.

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Has anyone had a cochlear implant?
From Meniers, I have no hearing in my right ear and my left ear fluctuates from hearing with my aid to garbled sounds and bad tinnitus. My otolaryngologist thinks it’s autoimmune Inner Ear Disorder brought on my stress from a traumatic shoulder fracture. He sent me to a rheumatologist that put me on a Mycophenolate and I had a bad reaction and was really sick for two weeks.
I contacted the otolaryngologist and have an appointment with a cochlear audiologist for testing.
I just spent 4 days not being able to understand people, the cell phone or the TV. It was very frustrating and lonely. I want to know more about implants from people that have them.

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@julieo4

Widex makes high quality hearing aids. To be helpful, though, all hearing aids must be fit properly. That takes expertise by the fitter. They also must understand variables their patients have if something isn't working right.

After you developed hyperacusis did the person who fit those hearing aids try to make adjustments for you?

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Yes but he said the volume was so low that I didn’t need the hearing aids. So I stopped using them and the hyperacusis stopped but the clogged feeling is still there. I hear everyone else fine but when I talk I notice the ear fullness and my voice sounds distant and muffled

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@pennyr

I used Widex hearing aids until I got a Cochlear Implant. I had no trouble with hypercausis, except in certain circumstances and I suspect many deaf people have sounds that are normal to others and too loud to them. I also wonder whether it was the make of hearing aid or just the fact that you were using hearing aids. HAs come with many different dome shapes. Did you try different domes to see if they made any difference? I tried different ones at the beginning to find the ones that I thought were best for me. It's an expensive investment not to try to do everything you can to improve the situation. Good luck.

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Are you happy with your cochlear implant?

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