Hi @Hope33250, a trip to ER complaining of bloating and abdominal pain, and a CT scan found I had colitis, and two masses on my abdomen. A followup PET/SCAN confirmed the findings. There were 2 round solid-appearing mass lesions identified in the anterior lower abdominal mesenteric fat. The smaller one measures 1.4 cm x 1.3 cm. The larger more inferior lesion measured 2.3 cm x 2.1 cm. Additionally, there was nodule/lymph node measuring 7 x 6 mm in size. This past January, I had a laparoscopic surgery to remove the mask from the small bowel. They also removed some surrounding lymph nodes. However, they were unable to excise the node measuring 2.3 because it was too risky. The pathology report rated the tumor as a Grade 2. However, my oncologist never indicated the stage. The tumor seem to only metastasis to three lymph nodes, two of which were removed. The other node they characterized as a mesenteric deposit tumor. The miraculous thing about this node is it shrink more than half (from 2.23 mm to 10 mm) since my initial PET/SCAN in December, and I have not started therapy. They are starting me on lanerotide next week to control the growth. My most recent PET SCan only shows the tumor in the area where the node is shrinking. No other indication of NET throughout the body.

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