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DiscussionAnyone have a neuroendocrine tumor in small intestine?
Neuroendocrine Tumors (NETs) | Last Active: Feb 15 6:24am | Replies (13)Comment receiving replies
Replies to "Hi @Hope33250, a trip to ER complaining of bloating and abdominal pain, and a CT scan..."
That is wonderful that the node is shrinking, @rogerstc. I am sure you are very pleased with that news. I'm wondering if you have had a 68 Gallium PET scan. This is a specialized scan that can detect NETs in other parts of the body. Here is a link with information about this scan,
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/. This scan is usually found in more sophisticated health care institutions such as research-oriented facilities like Mayo Clinic or a university medical center.
As you are going to be starting Lanreotide treatments here are some discussion groups that might be of interest to you,
--Lanreotide Injection
https://connect.mayoclinic.org/discussion/lanreotide-injection/
--Updating About My Lanreotide Injections
https://connect.mayoclinic.org/discussion/updating-my-lanreotide-injections-ct-scan/
Feel free to post in these group with any questions you may have as begin this new treatment.