← Return to Primary Cutaneous Gamma Delta T Cell Lymphoma

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@colleenyoung

Hi @laurie9434, having a rare cancer it can be hard to find others to connect with. I hope @cmahan10 and @dmahan26 return to share more with you.

Moffitt is a good cancer center. I'm sorry that you have to wait. If it is a possibility for you to go to Jacksonville, you can inquire about getting an earlier appointment. Here's where to inquire http://mayocl.in/1mtmR63

Are you currently taking anything to help manage the symptoms until your appointment? Have treatment options been discussed with you already or not until your appointment at Moffitt?

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Replies to "Hi @laurie9434, having a rare cancer it can be hard to find others to connect with...."

Hi! Thank you for responding. I just had my PET Scan this week, awaiting the follow up at the local oncologist. That's at the end of this month. I've been switched to a stronger Anti-fungal which I take twice a day...but, that's only to try and keep the Candida we can't get rid of in check. I am not receiving any treatment for the Lymphoma as of right now. I think they aren't going to do anything for me until I'm seen at Moffitt. Why we can't get rid of the Candida is the big question. The ID doctor, I believe, is now going with until they treat the lymphoma, the Candida is not going away. I haven't seen any info on people who were diagnosed because they had a resistant Candida infection. I don't even know what that means for the diagnosis, much less the treatment. Now, in hindsight, I have had weird rashes for a few years, including one that started on my upper back went down under my armpit and across my chest. It was at the beginning of Covid and I had a televisit and said to have Shingles. I'm beginning to think that was not Shingles. The rashes have all been so weird that I have documented them all with photos. I keep getting a red butterfly rash on my face, then it goes away. Needless to say, every blood test known has been done...it wasn't Lupus. Sorry I'm dragging this on. it's just so frustrating!!