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Cold feet due to neuropathy - need help
Neuropathy | Last Active: Apr 28 3:43pm | Replies (200)Comment receiving replies
Twins! My feet are cold almost all the time.....except for when they are burning, which is weird when I put them in cold water and they still just burn away there. I just did all the same tests you have coming up (Brain MRI, nerve conduction, punch biopsy) and have the SFN diagnosis with possible Sjogrens. I see that I am falling behind you in fun activities, though. I need to learn table tennis and bridge! 😀
Hang in there. And, don't do what I did--have ALL those tests, one after the other, in the same week. I freaked, my insurance freaked, it wasn't a wise choice. :0
Replies to "Twins! My feet are cold almost all the time.....except for when they are burning, which is..."
Ebero, I’ve found that drinking HOT water, at least 8oz helps. So easy and inexpensive!! Might help…, Bcool123
Thanks for making me snicker. Before I knew that I had neuropathy, I thought that I was experiencing cold feet when, actually, they were just going numb. I was wearing my sheepskin slippers in July but, when I put my feet on my wife’s leg, she said that my feet weren’t cold. Four and a half years later, our ceramic tile shower floor no longer feels cold. 😢
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Hang on you two.....@ebero and @smiddy73.....I want to try out for your team. Heaven knows I qualify. It's been 11 years since I was diagnosed with SFN (small fiber neuropathy. My feet are also cold almost all the time. When my life partner feels them, he says they are warm to him. At first, I thought he was teasing and then my MFR therapist told me the same thing. She works on my feet twice a week to keep the numbness under control in case I have to drive. She also notices when my toes are purple. Do yours change color? I just checked and the right one is very purple and colder than my left foot.
I don't play bridge but I do play mahjongg. Since I also have MCI (mild cognitive impairment). I could never learn bridge. My mahjongg partners very kindly help me. So sometimes I just give up and let them win as a reward.
At this point in my life, I am focusing on "Quality of life" choices meaning that I will work hard to gain some tolerance for these symptoms. However, I have a wonderful partnership with my PCP who I met right after my SFN diagnosis. We are good examples of shared decision-making. Just this week she reviewed my medications and realized that my urinary incontinence medication was not a generic and the price was elevating. So she did the research and found a substitute covered by my insurance. I'll take that kind of interest and commitment any day.
May you both have peace and ease in your lives.
Chris