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HOCM & VFib amiodarone, sotalol,camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 14 4:10pm | Replies (35)Comment receiving replies
Been on Camzyos since early December 2023. So far only positive results; after the first echocardiogram my doctor rushed to the waiting room to tell my husband that the blockage had disappeared and called it a miracle.
My symptoms of shortness of breadth and feelings of tiredness are things of the past.
Does anyone know if there is a point at which I can come off this drug or is this something I will need to take long term?
Replies to "Been on Camzyos since early December 2023. So far only positive results; after the first echocardiogram..."
So happy to hear that you’ve had such an immediate and positive result with Camzyos. My symptoms are identical to yours and I expect to be starting on Camzyos in the near future.
Been on a yesr and blessed with results. Asked my Dr for life
On this pill. She said "Probably"
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Not a doctor. Never played one on TV. My understanding is that if you go off Camzyos, things revert back to the way they were. The treatment is "reversible" that way. There's a video at https://www.camzyos.com/resources that explains the way it works in a nice, simplified way. Made it easier for me to understand how it is reversible. I hope your results are as good as mine, and that they stay that way!