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Crohn's plus Polymyalgia Rheumatica
Autoimmune Diseases | Last Active: Mar 3 6:09pm | Replies (19)Comment receiving replies
I have had Crohn’s since 2010, and have been in complete remission on Inflectra (infliximab). I was diagnosed with PMR two weeks ago, and have rapidly gone from a starting dose of 15 mg prednisone up to 40 mg. Another condition is asthma, usually mild and well-controlled on inhaled steroid, but not at the moment. Symptoms are just barely controlled. I am extremely leery about long-term prednisone use, and want to explore alternative options that can treat both. I will talk to my doctors about LDN and sulfasazine, but needless to say I’d be reluctant to go off Inflectra. It seems my gastro and rheumatologist will need to start talking to each other soon! Anyone else out there with PMR and Crohn’s?
Replies to "I have had Crohn’s since 2010, and have been in complete remission on Inflectra (infliximab). I..."
Prednisone is the worst drug on earth explore other options. Rheumatologists are quick to order.
Yes I have both. I take Eyntivio for Crohns and trying to find the right one for P. I las have RA
GOOD LUCK TO YOU!
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@prestol It can be so difficult to have one autoimmune disease, much less two. I have 3 and keeping track of everything is a full-time job for free! Let’s ask @suetex if she would return to the discussion and answer any questions.
I agree about being on long-term prednisone. I’ve been on it for maybe 6 years, but as soon as I tapered down to 3mg, some lesion on my brain returned. So I’ll stick with it for now
What most concerns you about having both Crohn’s and PMR?