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DiscussionMGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)Comment receiving replies
Replies to "I'm so sorry, the lack of validation is so hard to endure."
Thank you for connecting.
I’m very sad and depressed. I have a brain tumour that was operated on and most taken out but monitored yearly.
Two years ago I had a knee replacement. I was told I’d had a heart attack and then I hadn’t. Told I’d had an embolism but no evidence of one. Turned out I’d had pneumonia. I had other knee replaced four weeks ago so still in pain but otherwise went well. In between the two knee surgeries I was told I had MGUS I had asthma but turned out not asthma but heamatoma in abdomen from coughing also that my husband had treatable lung cancer which was symptomless so a shock. Pet scans in Scotland not working so paid to go and have one in London but too late as it had spread and is now terminal.
I have generalised anxiety now depression. My doctors surgery say I’m a hypochondriach and I’m a nuisance as I ring often. Can anyone suggest anything please I don’t get monitored for the MGUS even tho I have peripheral neuropathy in my hands and get a red rash like pinpricks of blood that changes to purple all over my legs and feet. I have asked to change to different GPs but have to wait 40 days so don’t really have a doctor anymore 😢💗