← Return to Does anyone have HHT? Hereditary Hemorrhagic Telangiectasia

Discussion
Comment receiving replies
@amartin945

I am currently seeing a ENT Dr. for my nosebleeds. He will cauterized the AVM'S that are bleeding in my nose. I have going to the cancer ctr since 2019 for iron deficiency anemia due to internal bleeding. Because I was also having nosebleeds also this entire time which was not being addressed, I decided to go to ENT Dr. and was diagnosed as having HHT. He referred me to the HHT Center of Excellence in Augusta, GA. Iron infusions and cauterization of sinus is my only treatments. Which I do about every two months. The center in Augusta discovered AVM'S in my sinuses, a few in my liver and a few in my lungs. I now have a few in my colon. I also have an enlarged spleen. My platelets are low so I can not take any medicine that is a blood thinner. My cardiologist ran tests on my heart and cat scans. I do not have AVM'S there.

Jump to this post


Replies to "I am currently seeing a ENT Dr. for my nosebleeds. He will cauterized the AVM'S that..."

I am so sorry you are going through this. What is the treatment for avms in liver and colon, I am getting tested for severe liver problems, not confident in the doctors here, they have no knowledge of hht, I go every 6 months to hht hospital that is 4 hours away, so will ask them what to do about colonoscopy and what procedures they do for that