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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)

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@shari715

I am so sorry. Getting the light treatment at home was a major difference and I was lucky because I drove the insurance company crazy until they agreed to pay. I as also fortunate in my diagnosis as my dermatologist diagnosed it when I basically had few symptoms just a suspicious lesion in my leg. Where do you live? Are there transportation services? Can someone drive you? What is the oncologist saying? No worries about long posts. Loneliness is terrible so feel free to reach out.

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Replies to "I am so sorry. Getting the light treatment at home was a major difference and I..."

Thank you for your concern. It is nice to know that I am not alone. I always say that I have been very lucky as there are a lot of people out there that have bigger problems than me. I live in Franklin, IN. Since SS is my only source of income, I do have to watch my spending. Unfortunately, I have always had to put off any health care for myself. I am twice widowed with both Wifes dying of major diabetic complications.
I must say that this condition is somewhat confusing to me. The final diagnosis from my dermatologist was Sub-cutaneous T-cell Lymphoma. I would assume that 'Sub' would mean under the skin. I think this was an error on her part. Also confusing is whether this is a cancer or not. Since cells are being changed and told to attack skin, it would sound like a cancer tome. And yet, I read that this is not a skin cancer:
Cutaneous T-cell lymphomas: These lymphomas start in the skin but are not a type of skin cancer. They account for about 5% of all lymphomas and include conditions like mycosis fungoides and Sezary syndrome23.
Regarding transportation, I have just changed my health plan this year and have not had a chance to try it out. My former plan included transportation, so I made an appointment and the day before my appointment they called and said it was not available in my area. I had to cancel. I have one daughter, two young adult granddaughters and son-in-law all with their own problems and too busy for me. Whatever, life goes on and you deal with what life throws at you. There is always tomorrow until there isin't.