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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 13, 2025 | Replies (899)Comment receiving replies
Sadly I have had to stop as suffered severe side effects. Very upset…. Severe headaches, jaw ache and not going to the loo (urine) so very very disappointed! Back to the drawing board.
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How utterly disappointing @katiekins. I'm so sorry you had to experience these terrible side effects. I would be disappointed too. What is your next step? Have you had a chance to discuss this with your cardiologist?