← Return to I'm back: increasing CA19-9 was accurate indicator of recurrence.

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@markymarkfl

Almost my story exactly. Sorry to hear it. We can all take different lessons from our own outcomes, but this is one reason I encourage people (at least people at risk) to get their CA19-9 tested while they're healthy. They'll know their own normal so they can recognize a deviation.

Personally, I have become more suspicious of Total Neoadjuvant Therapy before Whipple and none after if patient is NED, and almost absolutely opposed to "wait and see" for anything.

I do wish you the best. I'm now 15 months out from my recurrence being suspected on MRI, and 12 months into chemo on Gem+Cis+Abraxane and doing pretty well, all things considered, but believe my team and I missed several chances for a much better outcome.

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Replies to "Almost my story exactly. Sorry to hear it. We can all take different lessons from our..."

Yes, I am also very interested in why no post surgical chemo is recommended if clear margins and nodes. Studies have shown benefit. I pressed my surgical team and oncologist for chemo and was told by all that there is no need.