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CLL - Blood work Completed IGVA Mutation Analysis
Blood Cancers & Disorders | Last Active: Feb 21 12:10pm | Replies (10)Comment receiving replies
Lori! I want you to reach out through this computer and give me a hug as well! And, I want to do the same and hug you back. What a wonderful thing that you are doing helping guide us through these times. They are hard and I hope that you had the love and support that you and the rest of everyone here is giving when you were going through the beginning stages of your diagnosis.
The diet has not yet come full circle but we are definitely creating some great things to keep us healthy and we really aren't 'that bad' diet wise. And, I have to say that since this (and GOD knows I have been trying for a very long time before this diagnosis) has happened, Tim is now on Day NINE smoke free and I have not seen any Wawa gross sizzly breakfast sandwich remains or beef jerky packages in his car either!
We are going to Charleston for his birthday (2/16) and to see friends and family. So that will be really nice. That Saturday we are all going to the Dueling Piano's and that will be alot of fun! We have more friends and family there then here in Virginia Beach and were planning to move there in the next year or so. So, that is our plan that we are still holding on to.
It is very tough here. We have not made many 'friends' over the past 14 years that we have been here and we will need to be closer to those we love whether it is sooner or 40 years from now that we have to worry.
In the meanwhile, you guys here are keeping me on the up and up and I am trying my best.
BTW, Tim is my husband and I am Joee, his wife. It is confusing if you don't know!! LOL
Replies to "Lori! I want you to reach out through this computer and give me a hug as..."
Hi Joee, I think Tim had an appointment the 13th? Any news?
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Hi Joee! I love your name!! And I’m sorry for the mixup, but I’m betting this wasn’t the first time, right?! 😉
Honeslty, you’re doing great! You’re going to get through this and so will Tim. Sometimes these little things happen and good things come out of it! I’ve met so many incredible people along my odyessy that I wouldn’t have ever known if I hadn’t gotten leukemia, including being on Connect! So we never know what twists and turns our paths will take on the journey of life.
My story was a little different in that I was diagnosed and then admitted to the hospital the same day. I was in for 5 weeks the first time and started treatment right away. So really, no time to think about what was happening. But I’ve had enough other drama so I know the feeling of waiting for test results, etc..
Yes, I had a wonderful support team with my husband, daughter, friends and my medical teams. I never lost one night’s sleep with concern about my health... I was either going to make it or I wouldn’t. But I knew I was in the best hands possible with my local cancer center team and then at Mayo Rochester for the transplant. I also learned to no longer worry about ‘what ifs’…a total waste of time and stress inducing. It’s important to live in the moment and plan for the future. Don’t look back. ☺️ Sometimes I feel that I was spared to help other people get through their rough moments. It’s really my pleasure to be able to help.
If you’re interested, here’s a little story of a really amazing experience I had with being able to personally meet with a member whom I mentored. The young woman in the story is doing fabulously and will be graduating college in the spring. She’s just coming up on her 2nd rebirthday with her transplant. Another very positive story!
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/This little wake-up call has a positive thing in that it got Tim away from his cigarettes! That’s not an easy thing to do. But I’m betting he’ll be feeling so much better without them! And you’ll be a happy wife. ☺️
Wish him a happy birthday for me and have a fun with friends and family on his celebration. And really…just relax and have a great time! It’s going to be ok! Hugs.