I have been living with this condition now for over 10 years. It is progressively worse every year. I am shedding skin cells in my bed and all over the house. There is very little of my body that is mot affected. I have a wide black band around my abdomen and both palms are black. I have tried all kinds of lotions (watch out for the alcohol in them!) including coconut oil. Only a short-term relief. I have tried allergy pills to help with the itch. I also have advanced macular degeneration and can no longer drive. I am 77 this year and trying to set up appointments and get transportation is a nightmare for me.