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What is my obligation? (transplant caregiving)
Caregivers | Last Active: Apr 27 4:55pm | Replies (23)Comment receiving replies
You are not going to get any of those comments from me. I have been caregiver of two people. In one case, it was not the patient that treated me like dirt but other people. In the other case, the patient was abusive — very. I understand why you would feel resentment and how there is absolutely no help but plenty of criticism and complaining. It does not seem like the cancer centers have anything to help with this. Maybe it is an area into which our society should take a serious look and make improvements. One time, they were surveying the second patient about whether he is being abused at home and he even replied, “No, I do all of that.” They did not even bat an eye. I think people just want caregivers to shut up and take it. I mean, people tell you to just walk away. Unfortunately, that is really hard for a person of conscience to do when someone will be alone and suffering.
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My spouse has been vb and Psy abusive most our mrg.. ea time I was ready to leave I’d lose my job or he promised to be better..
Now he has gr 4 gbm. He’s had the surgery and treatments and still on adjuvant chemo. He’s doing very well physically and mentally except now he’s starting to get back to the verbal criticizing and complaining of me. When he acts this way I count the months til I can leave, but, if he were to take a turn for the worse, of course I wouldn’t abandon someone in that situation… so far his last 3 mris have been clear..he gets another mri end of may… hes on Temodar til August and gets an mri ev 2 mos and lab once a mo. ( dr said his last lab was normal.
So far he’s living a good quality of life, no pain, good appetite, and he can do more physical activity now than when he was on radiation.
He keeps improving …like others, we wait ev two mos with fingers crossed…hoping next mri will still be clear.