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Post Interferon Syndrome

Infectious Diseases | Last Active: Jun 26 1:44pm | Replies (515)

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@naomi2

I can relate. I may have chills, but the fatigue & muscle pain get me.

It's really hard when people don't understand.

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Replies to "I can relate. I may have chills, but the fatigue & muscle pain get me. It's..."

It took a few years for my close friends to witness what I am going through, post hep-c- - Interferon/Ribovarin 48-week (eleven months) of treatment - 2001-2002 . Of the two physicians who see me regularly, only one will admit the actual long term effects of the treatment. She has fought for my care and has treated me knowing what is actually is happening. It’s also difficult because we were “required” to “sign-off” on the box warning of efficacy and safety. There was no other treatment, for me, as my liver was failing after a blood transfusion during a bone tumor surgery, that was tainted with the hep-c virus, in 1980. There were no tests at that time for hep-c. I was even laughed at by one doctor saying: “you have non-A, non-B hepatitis…and sent me on my way. It was the beginning of the end…about three years after the harrowing treatment, as far as working and debilitating, did the nightmare begin, and has never ended, over twenty-five years of misery. The alternative is death….but some days that is welcome. My friends get mad when I say this but after seeing how I suffer, they understand, All we can do now is keep telling the medical professionals the facts and pray a LOT! Blessings Naomi, I will keep you in my prayers as this is the only thing I know to do. 🙏🏻😊