Has anyone been diagnosed with an autoimmune disease after covid?

Posted by rachelj1978 @rachelj1978, Feb 7 6:04pm

It's been 2yrs since covid and now I am being tested for autoimmune disease

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Not after covid, maybe because I already have a collection of autoimmune diseases. After catching H1N1 flu 14 years ago it triggered celiac disease. I was probably gluten intolerant for decades, but that kicked it into avoiding celiac. Symptoms with autoimmune diseases can be single to many, and easy or difficult Mine pre-diagnosis were mostly enlarged lymph nodes, skin rashes, GERD, and GI problems (all went away GF). The polyneuropathy and collagenous colitis came later. Viruses and bacteria can trigger various autoimmune diseases. Hopefully you will get a diagnosis, treatment, and will be able to heal.

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Hello. I was diagnosed with POTS as Long COVID is attacking my autonomic nervous system and now have all the symptoms of Sjogren's Syndrome which apparently goes hand in hand with POTS. I also had an autoimmune disease pre-COVID. It has sometimes taken a while for the medical tests/bloodwork to show the issue for new health problems. I have had Long COVID for over 3 years and I still have new issues pop up. I have been doing research in regards to the autonomic nervous system. The Vagus Nerve - part of you autonomic nervous system - impacts your immune system. I have let my doctors run almost all medical tests they deem necessary so that I can hopefully know all the issues I have and find out how to live/deal with them. Good luck

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@kayabbott

Not after covid, maybe because I already have a collection of autoimmune diseases. After catching H1N1 flu 14 years ago it triggered celiac disease. I was probably gluten intolerant for decades, but that kicked it into avoiding celiac. Symptoms with autoimmune diseases can be single to many, and easy or difficult Mine pre-diagnosis were mostly enlarged lymph nodes, skin rashes, GERD, and GI problems (all went away GF). The polyneuropathy and collagenous colitis came later. Viruses and bacteria can trigger various autoimmune diseases. Hopefully you will get a diagnosis, treatment, and will be able to heal.

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Thanks for the reply this hasn't been fun looks like it hasn't been for you as well. I will keep you in my prayers

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@smdawson540

Hello. I was diagnosed with POTS as Long COVID is attacking my autonomic nervous system and now have all the symptoms of Sjogren's Syndrome which apparently goes hand in hand with POTS. I also had an autoimmune disease pre-COVID. It has sometimes taken a while for the medical tests/bloodwork to show the issue for new health problems. I have had Long COVID for over 3 years and I still have new issues pop up. I have been doing research in regards to the autonomic nervous system. The Vagus Nerve - part of you autonomic nervous system - impacts your immune system. I have let my doctors run almost all medical tests they deem necessary so that I can hopefully know all the issues I have and find out how to live/deal with them. Good luck

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Thank you for reaching out and I am sorry for what your going threw this isn't fun and very frustrating. Do you mind if I ask what symptoms you are having?

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@rachelj1978

Thanks for the reply this hasn't been fun looks like it hasn't been for you as well. I will keep you in my prayers

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Thanks Rachel, I'm actually good. My autoimmune diseases are controlled by not eating things (gluten, legumes, NSAIDs, a semi FODMAP diet) and I can still eat chocolate. So life is good. It is hardest early in the symptoms and diagnosis, when one is dealing with not knowing, feeling sick, isolation and lack of understanding from others, and the overall grieving process. Hopefully you get a diagnosis(es) soon so your healing can progress.

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@kayabbott

Thanks Rachel, I'm actually good. My autoimmune diseases are controlled by not eating things (gluten, legumes, NSAIDs, a semi FODMAP diet) and I can still eat chocolate. So life is good. It is hardest early in the symptoms and diagnosis, when one is dealing with not knowing, feeling sick, isolation and lack of understanding from others, and the overall grieving process. Hopefully you get a diagnosis(es) soon so your healing can progress.

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I appreciate this so much thanks again.

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COVID in early 2022. After 3 months diagnosed with PMR. After a couple of months, diagnosis changed to inflammatory arthritis. Still having inflammation and arthritis in both hands. Was on methotrexate, now on Arava. Not reacting well to Arava. Continue to be on 2 mg prednisone, hydroxychloroquine as well as Arava. Frustrating. I feel like a guinea pig. What's next?

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Since having Covid in 2022, (was fully vaccinated and very careful), I have been diagnosed with the morphea form of scleroderma, and now being tested for possible concurrent Polymyalgia or another autoimmune disease. I now have profound fatigue, muscle and joint pain, vertigo, chest tightness and shortness of breath with minimal activity, skin burning and itching.
Prior to Covid infection I was hiking and backpacking and enjoying life. Unfortunately my husband traveled in January snd came home sick, and we both had Covid again.

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@gila

Since having Covid in 2022, (was fully vaccinated and very careful), I have been diagnosed with the morphea form of scleroderma, and now being tested for possible concurrent Polymyalgia or another autoimmune disease. I now have profound fatigue, muscle and joint pain, vertigo, chest tightness and shortness of breath with minimal activity, skin burning and itching.
Prior to Covid infection I was hiking and backpacking and enjoying life. Unfortunately my husband traveled in January snd came home sick, and we both had Covid again.

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Thanks for reaching out and I am so sorry. I haven't been the same since covid. Severe eye swelling, constant rashes, joint pain and swelling, also now have carpal tunnel and tennis elbow. Trying to get someone to listen has been very difficult finally starting the process to start testing for autoimmune disease. My heart goes out to everyone going threw this. It has destroyed so many lives iam starting to believe I will never go back to my normal life. Haven't worked in 6months yet can't get any help so unfair. These chats are helping so thank you again. Prayers for healing

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@rachelj1978

Thanks for reaching out and I am so sorry. I haven't been the same since covid. Severe eye swelling, constant rashes, joint pain and swelling, also now have carpal tunnel and tennis elbow. Trying to get someone to listen has been very difficult finally starting the process to start testing for autoimmune disease. My heart goes out to everyone going threw this. It has destroyed so many lives iam starting to believe I will never go back to my normal life. Haven't worked in 6months yet can't get any help so unfair. These chats are helping so thank you again. Prayers for healing

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@rachelj1978 ,
I already had several autoimmune conditions before my post covid syndrome. Still….I wonder what’s happened. Last week, officially diagnosed with tennis elbow. Omg, it’s painful. And, now extreme head congestion. Either more of my old condition or a new thing. Some symptoms have improved or even left, but some remain. I keep thinking one day my health will return. When?

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