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Unable to receive a dx, don't know where to turn next.

Chronic Pain | Last Active: Feb 18 5:27pm | Replies (29)

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@dlydailyhope

Hi, Gabby. When I read your post, I could relate with many things you have experienced. It can be time consuming, stressful, expensive, frustrating, etc. when you have to do so much work to get help and find answers to improve your health and quality of life. Many doctors focus narrowly rather than on you as a whole person with connected systems when treating you which misses the whole picture of your constellation of symptoms. After many years (7+) and a lot of doctors/$$$, I was diagnosed and treated for iron deficiency (need to get a full iron panel blood test for this), small fiber neuropathy (punch biopsy on calf/thigh), spinal stenosis (congenital), degenerative disc disease, cervical spondylitic myelopathy (compressed spinal cord at C5C6 causing many symptoms), thyroid nodule/Hashimoto's thyroiditis/hypothyroid, alopecia areata, anxiety/depression due to chronic pain, sleep apnea, breast implant illness, etc. At first, I was tested for Multiple Sclerosis and autoimmune diseases/Lupus since I had a positive RA factor and ANA (and mother had Lupus/RA). That was ruled out but I was never told originally by my rheumatologist that I had thyroid autoantibodies in my bloodwork showing my body was attacking my thyroid. I started to have more symptoms after having my son (struggled with infertility so long but got pregnant naturally which is probably due to my thyroid). Pregnancy and viruses (like Epstein Barr which causes mononucleosis or the virus that causes chickenpox) can definitely trigger things. I had chest pain starting after getting the COVID vaccine (Pfizer 2nd shot) for months and thought I was having a heart attack multiple times. The chest pain would wake me up from sleep or be first thing in the morning and started taking baby aspirin (kept next to my bed in case it was a heart attack). All of the cardiac testing came back “normal” but I certainly didn’t feel normal!! My recommendation is to have a full iron and thyroid panel, an ultrasound of your thyroid and lymph nodes. If something is suspicious, they should do fine needle biopsies of your thyroid and lymph nodes. Praying for you to get some answers soon!! Good luck and God bless❣️❣️❣️

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P.S. More detailed bloodwork panels help to give a better picture of what might be going on. If something is showing as “normal” but you do not feel normal, your doctor really needs to listen to your symptoms. You could have “normal” range bloodwork but it may not be normal or optimal for you. My thyroid TSH was in the normal range but I looked at the history of my TSH results and it showed that it was gradually creeping higher which showed my thyroid had to work harder to produce more thyroid hormones. Also, the chest pain can be very scary, especially when you have a family history of heart disease/heart attack (my mother died at 67 of a heart attack while lying on an emergency room gurney)!