I agree with you about the doctors. I have been on hydrea for 12 years, my only risk factor is I am over 60. I do not take hydrea the way my doctor would like because I get anemia. Consequently, my counts are always 700+. He gets so mad but refuses to hear what that my quality of life is more important to me than being exhausted.
I recently found this forum and it lifts my spirits to read how others are dealing with ET