← Return to Essential Thrombocythemia (ET): foods, diet, nutrition?

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@markdi

I was diagnosed at 50 and I am 68 right now. After my discovery Mayo doctors told me the only thing I could do was eat smart and exercise like crazy. I took their advice and started to do Triathlons , marathons, bike races etc. I found both things helped a lot and I too have been searching for foods or supplements to help. Was on one baby aspirin a day until Mayo last year had me switch to Pegasus. I know if I eat the wrong food and stop exercising I feel worse and there are times I have to force myself as I do feel the fatigue more and more. Hard to tell if it’s just age or the ET but I am with groups where 80 year olds can kick my butt so I always use that as my reason why. My platelets have risen for years from the 400’s up to the 800’s which is why Mayo started me on Pegasus. I have been on it 4 months now and for the first time my platelets went down to 480 so I am hopeful. Let us know if you find something that helps but I have tired so many diets and supplements and have not yet. I think I have spent more money on supplements than my treatments.

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Replies to "I was diagnosed at 50 and I am 68 right now. After my discovery Mayo doctors..."

Did you try the HU?

I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found through a blood test. I have been on baby aspirin all that time. When I reached 60 (6 years ago) they wanted to start me on more treatment but I have not done that. My levels fluctuate up and down but recently have been more up than down. I would really be interested to know more about diet and supplements to help and also any clinical trials. Does anyone have any helpful advice please?