← Return to Leiomyosarcoma: What can I expect now?

Discussion

Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: Feb 27 11:42am | Replies (59)

Comment receiving replies
@suzzee3

Love your positive outlook. Love at the end of your post how you want to help animals and people. Keep focusing on that positive. You got this and you have a wonderful fiancee supporting you. I would love to add you on Facebook. My name there is
Susan Harrington Ray
I will be praying God's complete healing over you.

Jump to this post


Replies to "Love your positive outlook. Love at the end of your post how you want to help..."

Thank you, Susan. I will look you up on Facebook . I spoke with the doctor today. He is in agreement there is no harm in seeking another opinion while I maintain with them there (seeking meds they may not have, other treatment options, surgeon's who may be willing to attempt, clinical trials, or just confirmation that all that can be done is being done). I was not thrilled the surgeon I spoke to was not wanting to do surgery to get it all out. Dr "Sam" today said the surgeon told him he just couldn't see stressing my body when he was pretty positive he couldn't get it all out. Dr "Sam" put it an order for a second opinion consult for Uof M(Michigan), so if I don't hear from them within a week, call for an appointment. I can get my teeth cleaned, my back fusion x-rayed checked, while having radiation. My last radiation treatment is March 20th. Dr Sam will see me back on the office the following Monday. Plans for starting chemo start then. I feel a slight amount of skin discomfort; applying the aquaphor and colloidal silver cream once or twice a day. Little twinge in my abdomen and back. Could be scar tissue moving, nerves regenerating, they said. My last spinal fusion was this past June; I know nerves take a long time to regenerate. As for the person who said my questions do not seem to have been answered...true. it is hard, I am seeing, to compare cases with a type of cancer that occurs in 1 out of 100,000 people. Any comparisons can help with the battle ahead of me ,however.