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Large granular lymphocytic leukemia (LGL) questions

Blood Cancers & Disorders | Last Active: Jul 2 9:51pm | Replies (21)
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@marlow2

I was hospitalized with COVID Pneumonia in December of 2021. I developed a Thymona shortly afterwards. In March of 2022, I was also diagnosed with t Cell LGL. Was on Methotrexate for 14 months and it did not improve my blood count. I tried Cyclosporine for about 6 weeks and couldn't deal with the side effects. I am on no chemo dru at this time. My Neutrophils are only .2 I think that COVID caused my Thymoma and T Cell LGL.

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Replies to "I was hospitalized with COVID Pneumonia in December of 2021. I developed a Thymona shortly afterwards...."
jumper123 | @jumper123 | Feb 12 10:02pm

I appreciate your comments and the suspected cause. Some products can cause different blood cancers and I think those products should be taken off the market rather than just putting a caution label on them. Your condition being caused by Covid, is a surprised to me in that I didn't know that could happen. Wish you the best.

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art43 | @art43 | Feb 26 5:46pm

My wife’s experience was a successful treatment for lgl with cytoxan. Contact Dr Loughran at UVA in Charlottesville, VA. He “discovered” lgl in 1985, and has written the book on treatment options. Google “Loughran” to get to their website.

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sonia85 | @sonia85 | Apr 30 5:36am

Dear @marlow2
HOW do you feel now?
on any med ?

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