I'm a 68 year old man who first diagnosed at about age 38. I believe my mother and father both had this same disease though they never had it diagnosed. I have been lucky to control any outbreaks (typically 2 to 4 per year) with doxycycline and triamcinolone cream. However, I'm currently experiencing a fairly serious outbreaknin my groin area after having had mild outbreaks in both armpits. So far nothing seems to be working. But as I've learned over the years with this
disease occasionally it just takes longer to go away. So far I can maintain my normal activities sans any major inconvenience. Though it is uncomfortable but not unbearable. I've read where some people have had great success after going on a daily and permanent regimen of naxoltraxone. Given the many side effects associated with it I can't see myself resorting tonit unless things get far worse. Who knows what positive treatments might emerge down the road.