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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)
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@joyelizabeth

I was diagnosed with it but never had Hodgingkons lymphoma and I was told my blood would be checked altho never seems to be. I think I have peripheral neuropathy in my hands and all my bones ache I had a brain tumour found incidentally but it was excised no chemo

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Replies to "I was diagnosed with it but never had Hodgingkons lymphoma and I was told my blood..."
Lori, Volunteer Mentor | @loribmt | Feb 7 8:09am

Welcome to Connect, @joyelizabeth. It’s interesting that you were diagnosed with Hodgkin’s lymphoma but never had it. Does that mean your diagnosis changed?
This would be a condition that requires monitoring with blood work. It might be something you need to be more proactive with calling your doctor to have a checkup and labs run to check to see if there’s any progression.
People with lymphoma can develop neuropathy and bone pain so I’d really encourage you to check in with your doctor.
Are you working with a hematologist?

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