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I have been diagnosed with MGUS this last month. I also have diabetes, heart failure, pulmonary fibrosis, stage 3 kidney failure, all from treatment I received in the 90's for Hodgkin's Lymphoma, stage 3. My biological father died of multiple myeloma, and I had 2 aunts on my Grandmothers side with Hodgkin's Lymphoma and some type of lukemia. My doctor says not to worry and it will be checked every so often. I do have some weird symptoms like a neurological jerking and burning all over my body at times that I can't explain. Just wondering if anyone else was dx. with MGUS after treatment for Hodgkin's?
Replies to "I have been diagnosed with MGUS this last month. I also have diabetes, heart failure, pulmonary..."
Hi @anitalouise45, late effects of treatment for Hodgkin's lymphoma can develop many years, even decades, after treatment and may include getting a secondary cancer. It sounds like there may also be a family diposition to blood cancers.
You have a number of chronic conditions that require constant monitoring. Does your GP monitor everything or do you see specialists?
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I was diagnosed with it but never had Hodgingkons lymphoma and I was told my blood would be checked altho never seems to be. I think I have peripheral neuropathy in my hands and all my bones ache I had a brain tumour found incidentally but it was excised no chemo