← Return to Sepsis: What's your experience recovering from sepsis?

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@vlbondon

Sepsis is it's own thing, and post sepsis syndrome is also a very real thing. Different. I had sepsis in November after a UTI infection one of many many over the past few years. This one gave no symptoms, my partner took matters into his hands or I'd be dead. He made the phone call, I thought I was just dying slowly and no one could help me. Delusions already. They kept me for 8 days, then home IVs for another six days. A week later I thought I was back to normal. Wrong. See my reply to Baxter near this one to hear my experience so far. It will get better, but at its own pace. I see a lot of posts about this complaint at about the fifth month and here we are. Fifth month or so. Frustration. And your sister, if she has a colostomy bag, has even more to grieve over and accept at some point. It doesn't always seem that being alive is good enough. That's the loss we grieve. I think I have worked through all the steps in my mind now, but only discovered the loss and grief part today. That give me a mental freedom to adjust to this new me, and give myself some slack. We comprise a huge group of post sepsis folks who are no being addressed and validated by doctors, so it's up to us with Mayo's group programs to do it ouselves. SO glad you are doing that for your sister. I am 78, have no one that gets it, and luckily I am used to being strong on my own. So now I must embrace patience and I think we all can bet back to an acceptable degree of lifestyle for each of us. Blessings for your sister, hope she can start some level of activity just to feel mentally in control of her life now. It will come.

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Replies to "Sepsis is it's own thing, and post sepsis syndrome is also a very real thing. Different...."

Thank you. It is good to hear that this is real. I may be facing another heart surgery but I have never been more afraid (even during open heart surgery) than I was during and since septic shock, I am not the same. I am confused during conversations, keep getting infection, no drive, have stopped “faking it” in front of my poor six year old autistic son. I can say it’s a terrible situation, yet I’ve done nothing to address it because I’ve lost the drive. And then to learn a second heart surgery is on the horizon, makes me so angry and actually jealous of my friend’s lives.