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Atypical pulmonary carcinoid

Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)

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@ekri

My sister had a bilobectomy done today as her atypical carcinoid tumor around 4 cm was located in bronchus intermedius. The doctor removed lymph nodes as well and we are waiting for biopsy report in about 2 weeks. Rapid biopsy during surgery showed clear margins. What I don't understand are the findings of PET/CT scan vs DOTATE she did prior to her surgery. The PET/CT scan shows SUV max uptake of 7.7 while the DOTATE shows uptake of SUV max 5. Why is there a difference and what does this mean. Is the carcinoid more aggressive and histological report will be more adverse and show higher grade. Also, at the end of PET/CT scan it says that it is classified as P4 in the NETPET score. Again what does this mean? Any help would be greatly appreciated.

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Replies to "My sister had a bilobectomy done today as her atypical carcinoid tumor around 4 cm was..."

@ekri, good to hear that the surgery was able to have clear margins. You're asking good questions. You may be interested in this related discussion:
- FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
https://connect.mayoclinic.org/discussion/fdg-pet-scan-vs-68ga-dotatate-pet-scan-for-neuroendocrine-cancer/
I'm also tagging other members like @marieritzman @gesmone1 @ce1b @gmapam who have experience with atypical lung carcinoid.

Has your sister spoken with her oncologist in the meantime to discuss the results of her testing and NETPET score? How is she recovery from surgery?